My child was born with a cleft palate due to Pierre Robin Syndrome. I am woundering if anyone knows of some test or something that can be done to determine...
Do you know if you or your child has Stickler's? There is a 50% chance of passing Stickler's on once you have it. We had a blood test to confirm my son's...
... JESSICA, I do not know of a test, but I was born with sticklers in 1961. I was the first born and my younger brother was no problems. I have a son and...
Hi. I was born in 1961 with sticklers although we did not know that it was sticklers until two years ago. I am the oldest of 2 and my youger brother is...
Hi Penny, Iam not an adult with sticklers but my son is the only one of 5 children with it.We have tried to trace it but cant find it in either family sides. ...
Hi Penny, My name is Marianne and I have Sticklers and Pierre Robin Syndrome. I'm not sure what age I was diagnosed.I'm 37 and live in Australia. I have a 17...
The fast paced advancements in education and technology require us to keep up to date in the chosen field. We also need to improve our skill sets or study a...
My name is Jennifer Oliver. My Son, Ian is 10 months old. We live in Huntsville, Alabama. Ian's biological father and most of his siblings has some variant of ...
Please please call me. My number is 7577685891. My name is Valerie McCandless and I live in Virginia but my oldest is from my first marriage and has...
Hi Jennifer, You,ll need alot of pateince with a stickler child. My son is almost 13, was diagnosed with sticklers after a retinal detachment in 2nd...
Hi Sticklersyndrome@yahoogroups.com, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can...
hI MY NAME IS CRYSTAL AND MY SON IS 24 hOURS OLD AND HAS BEIN DIAGNOSED WITH STICKLERS, hE HAS A U SHAPED CLEFT PALLETE AND SMALL CHIN ETC. HE IS ON BREATHING...
Hi Crystal. My son is 17 months old and was diagnosed at 6 months. The only way they can diagnose a child is through DNA and that takes usually 2-3 weeks. They...
Hi Crystal, My son is 2 now and he was born with Sticklers syndrome. He had a cleft palate and Pierre Robin Syndrome (small jaw). I would be happy to talk to...
Hi, I'm Mandy and my son Dean is now 6. He has pierre-robin sequence and marshall's syndrome (which is very close to sticklers). I remember feeling just...
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