Hi, My son had a trach tube put in when he was 3 days old because of his tongue. He kept swallowing it and it would affect his breathing and at the same time...
hi i have 4 kids,1 with sticklers and cleft palate with pierre robin. 3 of them has sticklers, 2 of them with all the eye problems and arthritis, my oldest...
Hello, I am new to this group and just have a few questions hopefully I can get some feed back on. My 3 and a half month old son has cleft palate with the...
Our daughter was also born with the cleft palate and pierre robin syndrome. We switched to a cup between 9-10 months and we found that it was way harder for us...
My child was born with a cleft palate due to Pierre Robin Syndrome. I am woundering if anyone knows of some test or something that can be done to determine...
Do you know if you or your child has Stickler's? There is a 50% chance of passing Stickler's on once you have it. We had a blood test to confirm my son's...
... JESSICA, I do not know of a test, but I was born with sticklers in 1961. I was the first born and my younger brother was no problems. I have a son and...
Hi. I was born in 1961 with sticklers although we did not know that it was sticklers until two years ago. I am the oldest of 2 and my youger brother is...
Hi Penny, Iam not an adult with sticklers but my son is the only one of 5 children with it.We have tried to trace it but cant find it in either family sides. ...
Hi Penny, My name is Marianne and I have Sticklers and Pierre Robin Syndrome. I'm not sure what age I was diagnosed.I'm 37 and live in Australia. I have a 17...
The fast paced advancements in education and technology require us to keep up to date in the chosen field. We also need to improve our skill sets or study a...
My name is Jennifer Oliver. My Son, Ian is 10 months old. We live in Huntsville, Alabama. Ian's biological father and most of his siblings has some variant of ...
Please please call me. My number is 7577685891. My name is Valerie McCandless and I live in Virginia but my oldest is from my first marriage and has...
Hi Jennifer, You,ll need alot of pateince with a stickler child. My son is almost 13, was diagnosed with sticklers after a retinal detachment in 2nd...
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