Where's our moderator to kick this girl out? This is the 5th time or so that she's spammed our group. :( Thanks and just wanted to know. Love y'all!!! Val...
what should i type in on youtube to see the videos? ... because a producer from "America's Got Talent' saw Brennon's videos on my Youtube account and wanted...
Type in the search field, comedygal1970. That's my account and the name of it. I can get the link, too, if you'd rather do that.. :) Talk soon and god bless...
Thank you for sending the link. We hope that Brennon does well and makes it to the show. May I ask how Brennon's Stickler's progressed and how he has handled...
Hi Valerie- I am sorry I can't figure out the Yahoo messenger. My son is only 3 months old but has been diagnosed with Stickler's-I was wondering how...
Hi Peggy...it's okay..it took me 4 months to explain email to my mother in law..LOL. Brennon was not diagnosed with it until he started going blind in his...
Hi Peggy My name is Jacqui. I have a son who is turning 2 on June 8. He was diagnosed with Sticklers at birth. We got the official dx when he was about 1. We...
That was awesome, Jacqui!!! I agree that you have to let them be kids.? That's first and foremost.? I will support Brennon in almost anything he does, and with...
Thank you all for the explanations- I really appreciate hearing about this as we had never heard of Sticklers or known anyone with it. We actually just got out...
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Hi, my name is Val, and I happen to be an RN. But.. my grandaughter was born sunday June 1 , with Pierre Robin sequence. she has a cleft palate and a...
Hi Val, My son was born with Stickler's syndrome, and we went through much hardship because of it. I've chronicled our experiences in my memoir, titled "God's...
Hi Val, My daughter was born with the Pierre Robin sequence cleft palate and receding chin. The important thing is to find a surgeon the parents can work with....
We met our daughter when she was 10 years old. She came from a home of gross neglect. It took us 2 years to get her diagnosed with Sticklers Syndrome. She has...
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My 22 month old son just diagnosed with Type 1 Sticklers. He has heart problems that required open heart surgery. Mild to Moderate Hearing Loss and Severe...
April, Sorry to hear that your son was diagnosed with Stickler's syndrome. My son has the condition. At birth, it was found that he had a hole in his septum...
April, My 4 month old son just got diagnosed with sticklers. He has severe myopia and the flattened face. The Dr. said his X-rays are typical of Sticklers...
It's interesting that you say there is shortening of the long bones. Our daughter (16) has what would fit that description along with a non-fluid gait. Our...
Lori My 2 year old has always had the similar problem. Ever since he was born, I have had to buy tops that were larger and he still has a tiny bottom. Hes 2...
It is something people always mention when they see our son- especially dr.'s and nurses- that Ben has a long torso and shorter legs- our geneticist told us...
My daughter is more like an upside down lightbulb! (I'd never let her hear me say that) She has a tiny chest and shoulders and unusually large hips. She...
Hi folks, I have short arms and legs, in fact I am only 4 foot 8", my body is the correct size for an adult.  I have to have at least a foot taken of...
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