I have two children who were born with cleft palate and we found out much later that it was due to Sticklers. In 2000 my youngest daughter had genetic testing...
Amen sister! I am or was, until 4 kids ago, an LPN in L&D and I don't think there's enough awareness of this!!! You notice when you take your kids to the...
I have stayed on this list for quite some time but haven't interacted much. It's info I seek. We are in the process of adopting our daughter who has been...
Hi Everyone, its so good to hear from some new people, My name is Emma and I am 35 yrs old and I have Sticklers, along with my sister who is 30, her daughter...
Hi Everyone, My name is Marianne and I'm 37 yrs old with Sticklers and Pierre Robin Syndromes, I also have a 16 yr old son Mike who also have both Sticklers...
Marianne, Thanks for sharing with us. I know for me anyway that any story or information hits close to home with me. I have come to realize that no matter how...
I have two children both lovely girls both sticklers syndrome. I was just wondring if anyone knew anything about genetics and how far in the research we are...
Hi! The Genetic Dr. tested my two boys and myself for Sticklers. The test came back saying that all three of us has Sticklers. All 3 of us have the same...
Hello, everyone! My son, Shaun, was diagnosed with Stickler's Syndrome. He had cataracts, hearing problems, a cleft palate of the soft tissue, and very...
Hi Mario Nice to meet you. I am Jacqui. I have a baby that has Sticklers. He will be 2 years in June. Samuel was born with Low Frequency hearing loss and joint...
Thanks for forwarding this to me Ruben. I will get in touch with Jacqui. Mario ... Mario S. Fedele God's Gift - A touching memoir of overcoming insurmountable...
Jacqui, Thank you so much for responding to my post. Sorry to hear that your son has Stickler's. I see some of his symptoms mirrored in my son. Though he...
We need sponsors! :) As many of you might already know, Brennon has been picked to come to New York and audition for "America's Got Talent". This is a first...
I hope that audition goes well for Brennon and that you all have a good time in New York. I could not see the pictures as they were not displayed. Mario ... ...
As most of you know, we had to go to NYC this past Saturday, because a producer from "America's Got Talent' saw Brennon's videos on my Youtube account and...
I came across an online community for individual seeking age gap relationships. Here all the people are seeking age gap relationships. Age is not important in...
Where's our moderator to kick this girl out? This is the 5th time or so that she's spammed our group. :( Thanks and just wanted to know. Love y'all!!! Val...
what should i type in on youtube to see the videos? ... because a producer from "America's Got Talent' saw Brennon's videos on my Youtube account and wanted...
Type in the search field, comedygal1970. That's my account and the name of it. I can get the link, too, if you'd rather do that.. :) Talk soon and god bless...
Thank you for sending the link. We hope that Brennon does well and makes it to the show. May I ask how Brennon's Stickler's progressed and how he has handled...
Hi Valerie- I am sorry I can't figure out the Yahoo messenger. My son is only 3 months old but has been diagnosed with Stickler's-I was wondering how...
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