hi everyone I would like to thank everyone for helping me with mt paper on Stickler. To the people who requested a copy of my report please be a little more...
Hi I haven't posted in a long while but wanted to pass on what I have learned regarding hip replacement. I am 38, was born with prs, cleft palate and poor...
Jane Thank you for sharing your story. I do have a question for you if you don't mind. My little girl has very low vision like you, but she is only 2. Have you...
I'm the same 26 year old having my second hip replacement. a few days ago I fell and have been using my walker every since and now I spent a very sleepless...
-Vision has to be checked regularly by retinal specialist my 8 year old is blind in left eye because it was not checked regularly I've had glasses since 2...
hi all! my name is jennifer and my daughters name is lara. she was born with prs and a dislocated hip. the drs believe she as campomelic dysplasia, a form...
Hi Tony I have thought about this question, and as I have told other 'parents', the people who suffer most are YOU. As the patient we get the attention and the...
I go once a year to have my vision checked by a very good surgeon, recommended by Moorfiels eye hospital in London, I used to go there, was lucky enough to...
Hi Jane Thank you for being so open about that. It makes me feel better about the future for my little girl. We have the same out look on how she needs grow ...
Jennifer, Hello. My daughter, Lauren, is 4 years old and she had a bilat.cleft palate. With feeding issue, you are right to play it safe and continue with...
Hello to everyone, my name is christine and i'm from ireland (unfourtunatly we don't have much in the way of a support group over here). i was born with ...
Hi Tony Horses are terrific and riding is brilliant because it keeps your bones and muscles strong. One thing to bear in mind, we have to be careful of bumps...
Interest rates have never been lower visit us to refinance you home now. Very Very Low. http://www.h73282.net/ [Non-text portions of this message have been...
sticklersyndrome@...
Dec 11, 2005 7:47 am
359
Hi Krissie I was just wondering what part of Ireland you are from my family comes from Kingary and most of our family has sticklers not that that has anything...
Hi (hey chickie Joni!) I have a 19 month old with PRS. SHe was just dx'd with Myopia. So now our Opthomoligist & Ped are rushing us off to genetics b/c our...
My son, Wyatt, has PRS and possible Sticklers. We are waiting to get the blood tests done next week. Wyatt is 2 months old. When did you have you have to get...
I just had my first child and they think he has Sticklers. How do we find out who gave it to him? I am wrestling with what to do if he has the Syndrome. We...
Hi Jenna, There is a blood test that can show if you have Sticklers but it is not very reliable, in the sense that many people having clinical manisfestations...
hello, I have a 2 years old girl with stickler. she has myopia , when she had the palate repaired(prs) she was 10 months and the doctor did a skin biopsy e...
I wish all of you Happy Christmas and to say thank you to be there . The Serenity Prayer God grant me the serenity to accept the things I cannot change; ...
Hey chickie! Jenna you have heard my story over and over....but i will say that I have heard that the testing is not very reliable. As you know we did not need...
I have a dd with possible Sticklers. SHe is at the 10th percentile for height and the 90th for weight. Are children with Sticklers norammly smaller stature? My...
Hey Jenna! I think the answer to your question is yes. Children with sticklers are shorter in stature compaired to their siblings that may not be affected....
70% of my family has sticklers and the one who have sticklers are all tall I think height has more to do with your families height my son who doesn't have...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the sticklersyndrome group. File :...
sticklersyndrome@yaho...
Jan 10, 2006 2:12 am
373
I everyone well it is finally done. I have post the report under file for everyone to read. I would like to thank everyone who e-mail me with their stories...
Alannah is 21 months old now and is off the scale for her height - she is above the 97th percentile. She comes in at 90th for head circumference and off the...
This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
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