So the first thing, I am 36 years old and was diagnosed with stickler's 3 or 4 weeks ago... Sounds a little odd, even to me, that I had not been diagnosed...
Your story sounds a lot like my husband. He is 33 and did not even know what sticklers was until we had our 2nd child. His mother is in her 50's and also just...
My husband was diagnosed w/ Sticklers by a genetic's doc when I was pg w/ my son. I'm not sure if I believe that Sticklers is a 50% 50% chance of passing it on...
Corine :) hello! I am Casie, 24, almost 25 mom to a 3 year old. I was diagnosed at 21 with sticklers and my son was diagnosed at birth with stickelrs and PRS, ...
hey all, Thanks for the messages... Joni ... I appreciate the odds game and if I had that driving need to be a mother to my own genetic child, I may have...
Hi, I am an adult with sticklers who has grown up my entire life (I'm 35 now) knowing I have the syndrome. As to the 50/50 chance I am the 5th of 6 children 4...
Hello everyone my name is Jacquie and I am a student here in Calgary Alberta and I am writing a paper on Stickler syndrome and I need some information on how...
I think our case would be an example of the extreme. How the negative effects of Sticklers can be exasperated when other socio/economic conditions are not...
Hi Lori Thank you for answering me. Yes I would be interesrted in your story, If you could answer the question I put forward in my first letter that would be...
First off, we are foster parents about to begin the adoption process with our daughter in February. Her background in the biological home was sexual & mental...
I am a 26 year old mother of four who was diagnosed at age 5 but had no idea what I was in for I am now about to have my second hip replacement within a few...
Wow, Nicole, God bless you. Where do you live? I've just found out about the Philip J. Rock Center in Glenn Ellyn, IL for people with hearing/sight problems...
Hello, Please click here to view my photos . ( my username there is Jmac114 ) :p http://www.geocities.com/hotsingle1979 http://www.geocities.com/lovelyapple025...
hi everyone I would like to thank everyone for helping me with mt paper on Stickler. To the people who requested a copy of my report please be a little more...
Hi I haven't posted in a long while but wanted to pass on what I have learned regarding hip replacement. I am 38, was born with prs, cleft palate and poor...
Jane Thank you for sharing your story. I do have a question for you if you don't mind. My little girl has very low vision like you, but she is only 2. Have you...
I'm the same 26 year old having my second hip replacement. a few days ago I fell and have been using my walker every since and now I spent a very sleepless...
-Vision has to be checked regularly by retinal specialist my 8 year old is blind in left eye because it was not checked regularly I've had glasses since 2...
hi all! my name is jennifer and my daughters name is lara. she was born with prs and a dislocated hip. the drs believe she as campomelic dysplasia, a form...
Hi Tony I have thought about this question, and as I have told other 'parents', the people who suffer most are YOU. As the patient we get the attention and the...
I go once a year to have my vision checked by a very good surgeon, recommended by Moorfiels eye hospital in London, I used to go there, was lucky enough to...
Hi Jane Thank you for being so open about that. It makes me feel better about the future for my little girl. We have the same out look on how she needs grow ...
Jennifer, Hello. My daughter, Lauren, is 4 years old and she had a bilat.cleft palate. With feeding issue, you are right to play it safe and continue with...
Hello to everyone, my name is christine and i'm from ireland (unfourtunatly we don't have much in the way of a support group over here). i was born with ...
Hi Tony Horses are terrific and riding is brilliant because it keeps your bones and muscles strong. One thing to bear in mind, we have to be careful of bumps...
Interest rates have never been lower visit us to refinance you home now. Very Very Low. http://www.h73282.net/ [Non-text portions of this message have been...
sticklersyndrome@...
Dec 11, 2005 7:47 am
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Hi Krissie I was just wondering what part of Ireland you are from my family comes from Kingary and most of our family has sticklers not that that has anything...
Hi (hey chickie Joni!) I have a 19 month old with PRS. SHe was just dx'd with Myopia. So now our Opthomoligist & Ped are rushing us off to genetics b/c our...
My son, Wyatt, has PRS and possible Sticklers. We are waiting to get the blood tests done next week. Wyatt is 2 months old. When did you have you have to get...
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