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sticklersyndrome@...
Sep 13, 2005 4:14 pm
318
Please take me off the list. i needded to do a project and that is why that i was in the groups Cathie __________________________________ Yahoo! Mail - PC...
Hallo, my name is Miranda I just found out about all of you. I did not how to use this sistem so I already sent an e-mail to some of you. I am italian my...
Hi Miranda, welcome to tthe group, look forward to hearing from you in the future, Emma Miranda <baronemiranda@...> wrote:Hallo, my name is Miranda I...
Hello Everyone. My name is Elizabeth I am 24 years old. My daughter Kenleigh was born April 15th 2005. She was born with a cleft palate. She was born ...
This group has benn sorta quiet lately. I am hoping everyone is fine . We sure are. Skyler just turned 3, and is doing pretty good. Hes going back to school...
Hi Elizabeth Welcome to the group. I think you will find this group is great place for information, and support. I want tell that my family is in NC too. Where...
HALLO, I AM TRYING TO GET USED TO THIS NEW (FOR ME) SISTEM TO COMMUNICATE AND I AM GOING THROUGH ALL YOUR STORY TO KNOW YOU BETTER. AURORA HAD THE EYES TESTED...
Hi Miranda My sister has just had a cataracs op, which has gone really well, just praying that her retina holds. Anyway, before she had the op she was offered...
So far I've read a lot about problems with the eyes. What about hearing? Our ophthalmologist believes Sticklers is a high probable match. We have an appt....
Hi Lori, I'm a mum to a 14 yr old boy who has SS/PRS and have SS/PRs myself. My son has been gettinghis hearing tested every 6 mths due to his hearing lost...
I've come to realize I'm a pro-active person, especially when it comes to my kids, instead of a reactive. We are actually adopting our daughter. She came to...
Hallo Emma , thank you very much, it really helps to know what other people do to cope with the same problem. Now that I found more information about...
My name is Teresa. I'm mom to 11mth old Johnny, who was born with a cleft septum, lip and both hard/soft palate. I'm looking to befriend other parents that...
So the first thing, I am 36 years old and was diagnosed with stickler's 3 or 4 weeks ago... Sounds a little odd, even to me, that I had not been diagnosed...
Your story sounds a lot like my husband. He is 33 and did not even know what sticklers was until we had our 2nd child. His mother is in her 50's and also just...
My husband was diagnosed w/ Sticklers by a genetic's doc when I was pg w/ my son. I'm not sure if I believe that Sticklers is a 50% 50% chance of passing it on...
Corine :) hello! I am Casie, 24, almost 25 mom to a 3 year old. I was diagnosed at 21 with sticklers and my son was diagnosed at birth with stickelrs and PRS, ...
hey all, Thanks for the messages... Joni ... I appreciate the odds game and if I had that driving need to be a mother to my own genetic child, I may have...
Hi, I am an adult with sticklers who has grown up my entire life (I'm 35 now) knowing I have the syndrome. As to the 50/50 chance I am the 5th of 6 children 4...
Hello everyone my name is Jacquie and I am a student here in Calgary Alberta and I am writing a paper on Stickler syndrome and I need some information on how...
I think our case would be an example of the extreme. How the negative effects of Sticklers can be exasperated when other socio/economic conditions are not...
Hi Lori Thank you for answering me. Yes I would be interesrted in your story, If you could answer the question I put forward in my first letter that would be...
First off, we are foster parents about to begin the adoption process with our daughter in February. Her background in the biological home was sexual & mental...
I am a 26 year old mother of four who was diagnosed at age 5 but had no idea what I was in for I am now about to have my second hip replacement within a few...
Wow, Nicole, God bless you. Where do you live? I've just found out about the Philip J. Rock Center in Glenn Ellyn, IL for people with hearing/sight problems...
Hello, Please click here to view my photos . ( my username there is Jmac114 ) :p http://www.geocities.com/hotsingle1979 http://www.geocities.com/lovelyapple025...
hi everyone I would like to thank everyone for helping me with mt paper on Stickler. To the people who requested a copy of my report please be a little more...
