we have absolutely no history of it in our family either ... ____________________________________________________ Start your day with Yahoo! - make it your...
My name is Joni. I am the mother to Ethan (perfectly healthy), and Evan PRS/Sticklers; I am also the wife to Paul (Sticklers), sister-in-law to Tiffany...
In my experience I have definately found that the Opthomologist or the Cranofacial Surgeon had the most information on sticklers. I would ask, ask, ask. Have...
We just returned from Kathryn's follow up from surgery and her othamologist is going to set up an appointment with a geneticist. Hopefully we will have more...
... Evan ... law to ... (PRS/Sticklers). Our ... only ... blind in ... family history! ... child yet ... lead very ... a child ... he does ... sister-in-law ...
I have to say that it is very unusual for sticklers effected people to be born with a cleft lip, it is only clefting of the palate that is associated with...
Well my 2 had their eye surgery on Aug 2nd cause their eyes kept crossing & the surgery went well. Just wanted to let you know in case anyone else's child has...
Amber, glad to hear it went well. But sad to hear they had to have the surgery. Both of them on the same day?? OH man LOL. How old are they again? My boy...
... won't have it. To see my sons eyes when he was younger it took 3 or 4 people to hold him down as they looked in his eyes w/ an eye speculum. Sorry I have...
Hello all i am nicole im 22 i live in minnesota i was born wiht a cleft lip and have had over 30 surgerys to correct it....i thought i was the only one in the...
Greetings Everyone! My son, Enoch, was born with Pierre Robin Sequence and Pectus Excavatum (also know as "Sunken Chest"). Yesterday Enoch had many ...
Hey! me again...I posted on the prs website but forgot to mention one thing. My sister-in-law also has the "sunken chest". And I am not sure if I mentioned it...
I am a foster Mom. We've had our daughter since she was 10, she is now almost 14. I have a medical list of her symptoms. Is it okay to post them here? We...
I personally do not see a problem in posting them here, that is what we are here for right? From what I understand, sticklers syndrome can be tricky when...
We've seen so many specialist over the past few years we actually do know quite a bit. Here's her "medical description" as I call it. Medical Description: ...
Wow! Great medical history, even I as a nurse dont understand some of the medical terminology without having to get good old Tabler's out. good luck with the...
Thank you for the kind words. We do love her as our own. She's been an incredible miracle how far she's come. We just had her hearing checked, I've been...
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
... Aparently attached will always be removed (see message above) Is it something that I can link to or can you copy the info into the body of the message?...
Hi all, I have been reading this group for awhile(you guys are very insightful and have taught me things I didn’t even know about this syndrome) and am ...
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Hello, I am relatively new to Sticklers. I have just started researching information on the condition. My son, Enoch, was born on March 1, 2005 for Pierre...
IMO I sort of agree with you. There is a type III that has nothing to do with eyes. The only difference in your family history and mine is that everyone that...
Maggie, Apparently, the test is extremely expensive and not conclusive. The price of it is probably why they do not want to do it, specially because the...
They way my family got around the $4000 test was to indicate to the insurance company that we plan to have more children and it would be in there best interest...
Refinance your home now, take 30 seconds and fill out this free form. http://refinowxtfsvs.usaweb.nu/ [Non-text portions of this message have been removed]...
sticklersyndrome@...
Sep 13, 2005 4:14 pm
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Please take me off the list. i needded to do a project and that is why that i was in the groups Cathie __________________________________ Yahoo! Mail - PC...
Hallo, my name is Miranda I just found out about all of you. I did not how to use this sistem so I already sent an e-mail to some of you. I am italian my...
