Hi folks Hope I find you all well. I am after a little advice and was hoping someone could help. My sister is due to have a cataract op soon and has been...
Hello Emma, It is funny that you wrote this now. It was two weeks ago from this Wed. that I had cataract surgery. No precaution was taken to secure the...
My Mother-in-law and sister-in-law have had the laser surgery on their retinas. It has been great for them. My mother-in-law has just had cateract surgery and...
Hi, Before I answer your question, I should give a little background. - Major detachment in left eye in 1967. Stitched back into place. (Lost significant...
Hello My name is Patti and I was diagnosed with SS in 1976 at the age of 12 when my retina detached and I went totally blind in my left eye. I spent 5 weeks in...
Hi Patti I think you'll fine that most of us have to educate our or our children's doctors about this. It is still amazing to me too. Welcome. I think you'll ...
Hi Patti, I think almost all of us could tell you a very similar story but I do beleive things are begining to change. My self and my sister spent 4 hours a...
Hi, my name is Magda and I'm new to the group. We are living in Kent, England. My daughter is now 4 months old and she was born with PRS and a cleft palate....
Hello! Get a quick glance of Healthcare News and Resources here http://www.allinonedirectory.info/HealthUpdate/ Take care, Kate "Love is just like life, it's...
My daughter was diagnosed with detached retinas in both eyes on Friday and had her right eye repaired same day. She also is profoundly deaf and was born with...
hi! im new to this group,i just thought id introduce myself, i was born with a cleft lip and cleft palate, im 19 years old and i live in the US. anyone...
Hello my name is Lisa and I am the mother of Ross who has Stickler Syndrome. He is 3 years old now and was diagnosed at birth. He had a cleft palate, has high...
we have absolutely no history of it in our family either ... ____________________________________________________ Start your day with Yahoo! - make it your...
My name is Joni. I am the mother to Ethan (perfectly healthy), and Evan PRS/Sticklers; I am also the wife to Paul (Sticklers), sister-in-law to Tiffany...
In my experience I have definately found that the Opthomologist or the Cranofacial Surgeon had the most information on sticklers. I would ask, ask, ask. Have...
We just returned from Kathryn's follow up from surgery and her othamologist is going to set up an appointment with a geneticist. Hopefully we will have more...
... Evan ... law to ... (PRS/Sticklers). Our ... only ... blind in ... family history! ... child yet ... lead very ... a child ... he does ... sister-in-law ...
I have to say that it is very unusual for sticklers effected people to be born with a cleft lip, it is only clefting of the palate that is associated with...
Well my 2 had their eye surgery on Aug 2nd cause their eyes kept crossing & the surgery went well. Just wanted to let you know in case anyone else's child has...
Amber, glad to hear it went well. But sad to hear they had to have the surgery. Both of them on the same day?? OH man LOL. How old are they again? My boy...
... won't have it. To see my sons eyes when he was younger it took 3 or 4 people to hold him down as they looked in his eyes w/ an eye speculum. Sorry I have...
Hello all i am nicole im 22 i live in minnesota i was born wiht a cleft lip and have had over 30 surgerys to correct it....i thought i was the only one in the...
Greetings Everyone! My son, Enoch, was born with Pierre Robin Sequence and Pectus Excavatum (also know as "Sunken Chest"). Yesterday Enoch had many ...
Hey! me again...I posted on the prs website but forgot to mention one thing. My sister-in-law also has the "sunken chest". And I am not sure if I mentioned it...
I am a foster Mom. We've had our daughter since she was 10, she is now almost 14. I have a medical list of her symptoms. Is it okay to post them here? We...
I personally do not see a problem in posting them here, that is what we are here for right? From what I understand, sticklers syndrome can be tricky when...
We've seen so many specialist over the past few years we actually do know quite a bit. Here's her "medical description" as I call it. Medical Description: ...
Wow! Great medical history, even I as a nurse dont understand some of the medical terminology without having to get good old Tabler's out. good luck with the...
