Hello, I hope this group message of mine finds the reader in good health and mood. I'm Anitha and this being my first post, I'll keep it short. You can find...
well hi all my 6 year old daughter has "pierre robin syndrome" and also has "femoral hypoplasia - unusual facies syndrome" also known as "femoral facial...
I do not know anyone personly, but if you check the message board at www.pierrerobin.org there was a couple posts from parents of children with the same...
thanks ... to you very late after the e-mail. I & my oldest two daughters Kayla (10),& Paige (9), also have Sticklers. I however went on to have my third...
Hi all Just found out that hypothyroidism runs through my family as well as Sticklers and I have been experienceing a lot of the symptoms involved. Such as...
Hey I just wanted to tell you about a great company I found! I applyed for a lower mortgage rate and i only had to fill in a simple form. This month alone I...
Hi folks Hope I find you all well. I am after a little advice and was hoping someone could help. My sister is due to have a cataract op soon and has been...
Hello Emma, It is funny that you wrote this now. It was two weeks ago from this Wed. that I had cataract surgery. No precaution was taken to secure the...
My Mother-in-law and sister-in-law have had the laser surgery on their retinas. It has been great for them. My mother-in-law has just had cateract surgery and...
Hi, Before I answer your question, I should give a little background. - Major detachment in left eye in 1967. Stitched back into place. (Lost significant...
Hello My name is Patti and I was diagnosed with SS in 1976 at the age of 12 when my retina detached and I went totally blind in my left eye. I spent 5 weeks in...
Hi Patti I think you'll fine that most of us have to educate our or our children's doctors about this. It is still amazing to me too. Welcome. I think you'll ...
Hi Patti, I think almost all of us could tell you a very similar story but I do beleive things are begining to change. My self and my sister spent 4 hours a...
Hi, my name is Magda and I'm new to the group. We are living in Kent, England. My daughter is now 4 months old and she was born with PRS and a cleft palate....
Hello! Get a quick glance of Healthcare News and Resources here http://www.allinonedirectory.info/HealthUpdate/ Take care, Kate "Love is just like life, it's...
My daughter was diagnosed with detached retinas in both eyes on Friday and had her right eye repaired same day. She also is profoundly deaf and was born with...
hi! im new to this group,i just thought id introduce myself, i was born with a cleft lip and cleft palate, im 19 years old and i live in the US. anyone...
Hello my name is Lisa and I am the mother of Ross who has Stickler Syndrome. He is 3 years old now and was diagnosed at birth. He had a cleft palate, has high...
we have absolutely no history of it in our family either ... ____________________________________________________ Start your day with Yahoo! - make it your...
My name is Joni. I am the mother to Ethan (perfectly healthy), and Evan PRS/Sticklers; I am also the wife to Paul (Sticklers), sister-in-law to Tiffany...
In my experience I have definately found that the Opthomologist or the Cranofacial Surgeon had the most information on sticklers. I would ask, ask, ask. Have...
We just returned from Kathryn's follow up from surgery and her othamologist is going to set up an appointment with a geneticist. Hopefully we will have more...
... Evan ... law to ... (PRS/Sticklers). Our ... only ... blind in ... family history! ... child yet ... lead very ... a child ... he does ... sister-in-law ...
I have to say that it is very unusual for sticklers effected people to be born with a cleft lip, it is only clefting of the palate that is associated with...
Well my 2 had their eye surgery on Aug 2nd cause their eyes kept crossing & the surgery went well. Just wanted to let you know in case anyone else's child has...
Amber, glad to hear it went well. But sad to hear they had to have the surgery. Both of them on the same day?? OH man LOL. How old are they again? My boy...
