Hi everyone, I'm 26 and living in london, I have known that I have had Stickler syndrome since an early age. I have been fourtunate by not having a cleft...
Hi Jody, its good to hear from you, I live not so far from you in Kent. As far as we can make out, my father me and my sister have sticklers. Would be really...
Hi Emma, It's really great to hear from you, you only live down the road from me really don't you. I was told back in 1990 at Addingbrocks hospital in...
Hi Jody and welcome to group. Congratulations early on you new baby. I hope everything goes smoothly. As for you question about how long before they can give...
Hi Tony, Thanks for the welcome, Jody :-) ... From: Tony Sizemore To: sticklersyndrome@yahoogroups.com Sent: Monday, February 07, 2005 1:29 PM Subject: RE:...
Hi everyone, i have not visited here since last September as we were told Sticklers was unlikely for Alannah our little girl. Well heloo hello she has just...
Simone, Hello :) I am Casie, I have a 2.5 year old boy :) Hes got sticklers, and PRS. We avoided the distraction this far, but he as trached at 5weeks old. I...
hi Casie Thank you for replying.... i think it is hard that along with Alannah's diagnosis, we also found out that I must have it and my Mum and my Grandmother...
Hi! My husband was diagnosed w/ Sticklers when I was PG w/ my 1st child when seeing a genetics doctor. Thats when we figured out lots of his family members...
Hi Amber Thankyou for your information. It is lovely to be in touch with others sharing in this situation. They won't do embryonic testing for this particular...
Hi all, Its been a while since I have been on.I enjoy reading all of your letters and getting input to all of this.My son (16) was diognosed with sticklers 2...
I am an only child too. My dad recently passed away from M.S. so I am worried I might have that disease. They now say it can be herditary. ~Amber ... is ... ...
Hi again Amber, My Dad and my paternal grandfather (dec.) have Alzheimer's disease and that runs in family's too, so I know how you feel, because I worry about...
Hear hear!!! I figure that in my family, it's either Stickler's, Alzheimer's, heart disease, stroke or cancer!!!! LOL Good bunch of things to choose from hey? ...
My kids had their usual 6 month eye check-up today. My kids' eyes keep crossing lately & doc says that they may need surgery & refered me to the University of...
Hello! I am so glad I found this group. My name is Joni and I have a two year old and a 6 month old. My husband, sister-in-law and mother- in-law have...
Hello, I have a 7 months old daughter with PRS. Although I do not have any personal experience with arthritis, I have heard from a relative new treatments -...
After your childs surgery there will probably be dried blood around his mouth & you may need to request some pain meds for him if he has discomfort. They will...
Hi Joni, I wish I could give you info on the surgery and the arthritis.My son has sticklers and it has only affected his eyes(so far).I did want to welcome you...
Hi Joni, sorry to hear your husband is suffering. I am the same age as your husband and have the same problems. My sister and I have found regular swimming has...
Thank you so much for your advice! His parents do not live very far from us and have a pool. Hopefullt when it warms up I can get him swimming regularly. He...
I was just wondering if anyone else had this problem...My son is 7 months old and has prs and sticklers. He is due for his palate repair and tubes in April. He...
Hello :) Our little guy who is now 2.5 had a really late start on all his mile stones...yet I keep getting reasured that there is no other reason for that...
hi my daughter has prs and sticklers and is going to be 7mos old on march 23 and she is not sitting or crawling yet!! so you are not a lone!!! i hope she...
I just wanted to ask everyone to remember Evan in your prayers on Tuesday. He will be having his palate repaired and tubes put in his ears. Any last advice...
