Hello, my 5 year old has pierre robin,vision problems, and hearing in one of his ears is not good. He also has joint problems but they are not that bad yet. ...
Hi Val, well Ty can be a handful - he hasn't been diagnosed with any behaviour type disorder (add, adhd) but he's likely not far off. He does have a tough time...
coty does some wierd movements with his arms and hands he can turn his hands in a 360 degree angle and bends his arms in such wierd positions, so yes I can ...
Hi, my name is jane - i was born with a cleft palate and pierre robin syndrome in 1967. <br>I have always had poor eye sight, my retinas have detached a few...
i have posted a photo of myself. Val I think the picture of coty is so cute, i will try to scan some of my baby pictures some time and you will see the...
Hi Jane, nice to "meet" you! I have a son, Ty, with Sticklers. Are you a member of SSSG? What kind of horse do you have? We have race horses and my daughter...
hi barb - yes i am a member of sssg.<br>i have a 23 year old welsh section c gelding - who is my baby.... he thinks he is 2 most of the time anyway.<br><br>how...
hi again - i had a look at your home page, it is really interesting and i loved the pic of tyler and lauren. <br>i have never actually met any one else with ...
I was happy to see someone else joined my club. When I started it I didn't think anyone would join or know what stickler's was..I so interested in knowing more...
I just joined and am glad to be able to share some info with people with the same "Curse" as I call it.LOL My name is Chris and I am a 30 yr old with stickler...
Hi Jane, we live in Canada, near Montreal. Welcome to Chris too! Tyler was born with a cleft palate, Pierre Robin sequence, he is hearing impaired, has severe...
I'll send out the link when I email others in Canada with it. There is also a list server and discussion forum available through the sticklers.org website....
U said Tyler was the only one in the family with it. U have other children unaffected by it? I was the first in my family to have it and was passed to everyone...
Hi, yes Tyler is the first in our family to have it - it is a spontaneous mutation. I have a daughter who is unaffected and no one in our families has ...
The 2002 conference is planned for Baltimore the weekend of June 14-16. I<br>signed a contract today with the AmeriSuites at the Baltimore Airport<br>location....
hi - i'm really glad that this club is growing slowly, it is really nice to meet you.<br><br>tyler sounds like a fab kid, he has a hell of a lot to go through...
You know I think it is so strange that Chris and I have got 2 boys together and only one really has the problems such as our oldest son Coty he has vision,...
Hi Val<br>i have worn glasses since i was 18months, then lenses from aged 11. The lenses mean i can go out with a chaperone as you get that little bit better...
just a quick one - i have never heard of anyone with a cleft lip and sticklers, i have always believed they were separate conditions. The sticklers being ...
Hi Val, does Jaycee actually have Sticklers? There are alot of families affected like that - many members have Sticklers, but there are many different symptoms...
Yes Jaycee actually has sticklers..He was diagnosed when he was born he had a cleft palate and had to have a g-tube for feeding. Jaycee spent about a week in...
Ty was the same - he was in hospital for 2 months with feeding and breathing difficulties. Luckily the drs. were able to manage his breathing without having to...
I have raised APBT since I was 14.I wouldn't call myself a breeder.I just love the dogs and what they stand for.They will do almost anything they can to please...
about pitbulls<br>yes i believe they are banned in uk but don't know the in's and out's of this law. my friend has a cross - gorgeous kind dog - he is crossed...
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