Hi I am Casie, mommy to Skyler, I wanted to share with you the pictures I just added in the picture link...they are under Skyler C and Family. Hes my little...
First of all, Cassie, I just wanted to tell you that your little man is such a cutie! He looks like a big healthy boy! Did he ever have weight gain problems?...
Andrea, Thank you soo much. We are really proud of this little guy :) Yes they did lable him "failure to thrive" Even though he was 9 lbs when he was...
Hi group~ Well, once again, I am fairly new here but the vetrans of this group have made me feel so overly welcome here that I am now coming to you with a very...
I am so so sorry for what you are going through. I can understand why you waited. I felt the same about having another child but my clock was ticking too...
It was very interesting to read what you posted. I nearly lost both my children at 12 weeks, but fortunately with a lot of bed rest was able to continue...
Hi, everybody. This is my first visit to this group. I am Gerdine, 38 years old form the Netherlands. Today we visited the genetical expert at the hospital,...
Hi Simone~ It was so interesting hearing about your situation. You see with my family, there is no one who has Stickler's or any symptoms who have been related...
Hi, I've just been referred to a geneticist as possibly having Sticklers (26, bilateral retinal detachments and myopia, high tone hearing loss, congenital hip...
Hi All, Hope you and your familys are well..Just needed to talk..Son going for 8th surgery since last Aug.He has had retinal detatchments and now is dealing...
Hi all, Hope all is well with all your children. My son just had his 8th surgery on his eye(retnal detatchments and glaucoma) and is doing ok..Going in Dec. to...
Hey guys, I hope you all are doing good, we are doing ok. SKyler is battling a cold right now, I thought we were almost done, but it "flared" up again this...
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... group ... you ... Hi! I am new here. My name is Heather & I along with my two daughters have stickler-syndrome. We just found out a little over a year...
Heather, Wow, nice to meet you...Sounds like you are doing well. I have a son, Skyler he is just over 27months old now, he has sticklers and prs...with the...
Hello My name Is Charlene. I am married and have 3 kids. My oldest who is now 15, Danielle), was born with a cleft palate and lip. She is doing well now. I...
Welcome Charlene.. I am Shauna.. I am 28 yrs old and I have Sticklers. I was born with no nose bridge and so therefore i have the "flat face" (trust me kids...
Hi Charlene, Iam Charlene also.My 16 yr old son has sticklers.He is most affected in his eyes.He is going for his 9th operation in a couple weeks.(retna ...
--Hello, thank you for the welcome. I guess I didn't realize that this syndrome, could affect your eyes. i guess my daughter had a mild case, just one side of...
Hi again Charlene, Yes this syndrom can affect all the conecting tissues.(heart,joints,eyes} doesnt affect everyone the same. What was the surgery your...
Hi everyone, They didn't do the genetic testing in the hospital because they "forgot" and I didn't find out until I started calling for test results. Of...
Hello, I have a 5 months old baby with PRS. I live in Europe in a country where having a genetist in the bunch of doctors seing your child is not common. When...
Dear all, I forgot a last question. Till any Stickler diagnose is addressed, do you think it is wise to visit an olphtalmologist and otorhinolaringologist? How...
Elena It is very important that you try to get the test done now. If you where to get a positive test back there are a number of this that you would need to ...
Hello Tony, Many, many thanks for your information and advice. I found the web you recommended very useful. I will insist on doing the test on my next...
Casie, How nice to hear from you. I live in Myrtle Beach, SC now. I am from Newark Ohio though. We will more than likely be going back this summer. Just...
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