hi, Being a person who was born with a cleft palate of the hard and soft. I can tell that the hole that is still in your daughters mouth after the repair does...
hi, When I had my daughter I seen a genetic counselor and she told me that cleft palate isn't really all the genetic. That yes genetic does play a part but a...
Hello, My name is Macy Dinger. I am 19 and because of special circumstances i am just starting surgeries. When i was young they repaired the lip but that is...
Hello everyone! My name is Andy , I am a 32 year old Microbiologist from Glasgow, here in Scotland. I was surfing and found this page.I was interested to read...
Hello, I just read the post and wanted to say it was nice and I thought that how u motivated yourself was interesting...LOL...Take Care and hope everyone...
Here are some recent pics of our skyguy...thanks for letting us share with you. ~Casie and Mike Casie Caughlin has invited you to see photos at the Walmart.com...
http://www.thesandiegochannel.com/news/2878850/detail.html Troubleshooter Changes Toddler's Perspective Of Life LensCrafters Donates Glasses To Allrunner ...
Another good link to check out is: http://www.secretservice.gov/alert419.shtml Shelly Moore President - Oregon Chapter National Marfan Foundation (Self & all 3...
Sorry for the mis-post - Wrong Stickler's list - opps :-0 Shelly Moore President - Oregon Chapter National Marfan Foundation (Self & all 3 kids Stickler's...
I know most of the group members here are mothers of sticklers children. But Iam a sticklers child. Im 14 and live in colorado I found out I had the syndrom in...
Welcome Amber, My name is Casie I have an almost 20 month old little boy named skyler. He too has Sticklers along with another condition called Pierre Robin...
Hi, I'm the mom of a 7 year old recently diagnosed with Stickler Syndrome. She was diagnosed at birth with Pierre Robin Sequence and has had a couple of cleft...
I e-mailed you & I added my family's pic to the photo section.~Amber ... little boy named skyler. He too has Sticklers along with another condition called...
Hello there, My name is Casie, I have an 20 month old son who also has prs and ss. At his birth we expected a cleft palate due to my family history. But that...
Where about are you from? One place that i would recommend is Shriners Hospitals and Clinics if you are having any problems with insurance.. They specialize...
Thanks Melanie. We live in K.C. and all her care so far has been at Children's Mercy Hospital. They're a great place to go, but there are so many specialties...
Lately many people have been asking where the PRS and SS came from in my family...and how we didnt know until Skyler was born (WHO KNOWS right?) But I know...
--Hi I feel for you being the Mom of a child with sticklers also.My son has had 5 surgerys since august and has more to go.All of his problems so far are in...
-Hi..Yes the cleft palate is a symptom of sticklers..My son dosent have it but he has the retna detachments and has had 5 surgerys since august..I wish you...
Both my kids have sticklers syndrome my son had the cleft palate but my daughter didn't. I was told by the genetics doctors there are 2 types of sticklers....
i have a cleft palate along with middle/inner ear problems i havent lost hearing yet except for very high tones, i also am nearsighted but not severely i found...
thats strange i have clef lip'n palate, and inner ear problems, also nearsighted. i would ask ur mom about it and confront her, cuz u could get help 4 that....
Hi I was born with cleft lip palate. I am software and web developer. I would like you to provide FREE forum, Live Chat gallery etc for Stickler Syndrome. Or...
Hi Even thought I don't have any this syndrome I am interested in this. If any member would send me more info so I can post the info on www.oncleft.com . Also...
... lost hearing yet except for very high tones, i also am nearsighted but not severely i found a paper from when i was 5 saying i could have probable PRS/i...
Both of my daughters, 17 and 19 have sticklers syndrome, so does their father and his oldest daughter. Except for my 19 year old daughter, the other 3 were...
Hi, I haven't been on lately due to trouble with Tyler and his new arthritis. I just wanted to let everyone know about the conference coming up soon in...
Hi all, Here we go again..This poor boy has been there and back since last august..this is his 6th surgey..this time is for glaucoma in the left eye...the...
I was really far into debt. Like Most I was in Financial dispair. I could not seem to get ahead no matter how hard I tried. Untill I found this place. ...
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