... < Hi my name is crystal, I have a three month old with PRSincluding a soft palate cleft and Marshall syndrome with an overlapping of stickler 2,> Hi...
I just got back from the Sticklers Conference in Los Angeles. It was amazing to meet people and young children that have the same thing as my son. Its amazing...
Jennifer, Its great to have gone there and meet other sticklers people. It must have been very imformative at best. I have to say your son sounds alot like...
I just got back from the Sticklers Conference in Los Angeles.It was amazing to meet people and young children that have the same thing asmy son. I agree...
While "Googling" many, many websites dealing with Stickler Syndrome, I finally came across this wonderful web site. My daughter is 26 YO and has been...
I do not want the entire group seeing these photos.Because some may recognize me. Here's the link: http://rasallover.zoomshare.com/files/photos.htm Enjoy babe...
hello i am Ruben Moran i was born what stickler syndrome. Now i am 17 and is rely hard to live what this. i can do what other teens my age do. i can play...
Hi Ruben, It's nice to meet you. My name is Ivy, I'm the girlfriend of Doug who has
Stickler Syndrome. Doug and I started this group together so we can get to...
Oops!! I apologize!! I thought this was the group that my boyfriend and I
owned for Sticklers. I do NOT own this group. I thought I was responding to
our...
Hi Ruben, My name is Emma and I like you have Sticklers, I'm 37 but I do understand what you are going through and have been there myself. I know not doing...
ya i am going to tray to swim more. also do you now people the have the gave stickler. because is rely odd to find people what this problem. ... From:...
ok, the other side of the world to me, I Live in London, We have a group here called Stickler sydrome support group, who have a young members group up to the...
Hi ruben and emma my name is Jennifer. I am the mother of 2 sticklers girls aged 8 and 3. And the wife of a sticklers man age undisclosed or I think he might...
just tell her to tray to ignore than of she put attention to than she is going to be more teased. but of dosing they are going to get tired because she is not...
Hi Ruben and Jennifer, My name is Marianne, I'm 38 and have stickler's, i'm also the mother of an 18 yr old boy with sticklers. My son Mike loves to play...
haha! I i found a very interesting movie today, so I wanna share it with you. You can watch online here: http://woomovie.zoomshare.com/files/OnlineMovie.htm...
I do not want the entire group seeing these photos.Because some may recognize me. Here's the link: http://ladymoxie.zoomshare.com/files/photos.htm Enjoy babe...
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