Hi Kay-

Can you tell me more about how your family is affected by marshall
syndrome? Are all the symptoms like stickler syndrome? Did you get
tested for marshall syndrome? I was tested and mine as mentioned
before came out as stickler-marshall syndrome. I have all the
characteristics of SS, but some say marshall syndrome is just like
SS... ?? I have done research on Marshall syndrome...but as you
probably know..there isn't much out there on it. I have found some
things that I have are related to the Marshall syndrome (I have very
sparse hair), but not much more info other than that. Were is your
family from? I am from Minnesota. Sorry im rambling on here... Hope
to hear from you soon.




--- In sticklersyndrome@yahoogroups.com, "Kay aka mom2three"
<mom2three@s...> wrote:
> Welcome! My husband is Stephen who has Marshall Syndrome. In turn
2 of my children do too. Ashlyn is 5 and Aaron 8 months.
>
> Kay aka mom2three
> Wife to Stephen smcp unrepaired
> Ashlyn 12/2/97 tcp repaired
> Jesalayn 8/5/01 nca
> Aaron 10/2/02 bcp repaired
>
> www.geocities.com/mom2three@s...
> ----- Original Message -----
> From: Melanie
> To: sticklersyndrome@yahoogroups.com
> Sent: Monday, June 02, 2003 12:51 PM
> Subject: [Stickler Syndrome ] Re: Introduction
>
>
>
> Hello!!
>
> I am new to the board. I was diagnosed with Stickler-Marshall
> Syndrome a few years ago. A little about myself...I am 23 and
from
> Minnesota. Look forward to hearing from others.
> Melanie
>
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