Hi Val, as I just put in my post to Fay, Ty is going through this now
too. We are going to homeschool him for awhile, he has just been
through too much lately. Have you considered going to the conference
at all? It is in San Jose this year and I think Chicago next year.
Unfortunately Ty cannot go with us this year( I think it would really
help him) but we definitely plan on making sure he goes next year.
How did your son recover from the surgery? Hope all is okay.

Take care & hope to hear from you soon.

Barb

--- In sticklersyndrome@yahoogroups.com, val575 <no_reply@y...> wrote:
> Hello I was told by a doctor in St. Louis at Childrens that it is
> common because my son experiences it. He is on a antidepressent now
> and it is of course because he hates how he looks and how the other
> kids stare at him and make fun of him. I was just reading a article
> and i am gonna post it because I had some concerns that I want to
> discuss with the Team of doctors we see and maybe this link could
> help you too..I hope all is well for you and take care I will be
> posting the link as soon as i am done with this.....SMILE PEOPLE
> CARE!
>
>
>
>
>
> - -- In sticklersyndrome@yahoogroups.com, "faybaby24202"
> <fay.lesley.mcleod@b...> wrote:
> > Hi there, I have been a member of this group for a while now but
> > haven't actually posted a message. Both myself and my son were
> born
> > with Pierre Robin Syndrome. I was told all ym life (up until I
had
> > my son) that it was isolated pierre robin syndrome. however when
> my
> > son came along also with pierre robin syndrome, the geneticists
> got
> > involved. Although they ahve done lots of testing, all tests came
> > back negative. However the geneticist beleives that we may ahve
> > partial sticklers syndrome. He thinks that we'll need to wait and
> > see what happens in future generations, what symptoms will
> manifest
> > etc.
> > I have quite a lot of features of sticklers, pierre robin
> syndrome,
> > facial abnormalities, hearing loss to name a few and Brendan has
> > pierre robin syndrome, small toe nails, tapered fingers, crinkled
> > tops of his ears for eg.
> > The question I need to ask is that I'm sure I read somewhere that
> > mood disorders/depression etc can be a symptom of sticklers too.
> But
> > I can't for the life of me find this info again. Does anyone know
> if
> > I'm right in thinking I have read this, and where can I fid the
> > info.
> > thanks
> > Fay
> > xxx