Hello I was told by a doctor in St. Louis at Childrens that it is
common because my son experiences it. He is on a antidepressent now
and it is of course because he hates how he looks and how the other
kids stare at him and make fun of him. I was just reading a article
and i am gonna post it because I had some concerns that I want to
discuss with the Team of doctors we see and maybe this link could
help you too..I hope all is well for you and take care I will be
posting the link as soon as i am done with this.....SMILE PEOPLE
CARE!





- -- In sticklersyndrome@yahoogroups.com, "faybaby24202"
<fay.lesley.mcleod@b...> wrote:
> Hi there, I have been a member of this group for a while now but
> haven't actually posted a message. Both myself and my son were
born
> with Pierre Robin Syndrome. I was told all ym life (up until I had
> my son) that it was isolated pierre robin syndrome. however when
my
> son came along also with pierre robin syndrome, the geneticists
got
> involved. Although they ahve done lots of testing, all tests came
> back negative. However the geneticist beleives that we may ahve
> partial sticklers syndrome. He thinks that we'll need to wait and
> see what happens in future generations, what symptoms will
manifest
> etc.
> I have quite a lot of features of sticklers, pierre robin
syndrome,
> facial abnormalities, hearing loss to name a few and Brendan has
> pierre robin syndrome, small toe nails, tapered fingers, crinkled
> tops of his ears for eg.
> The question I need to ask is that I'm sure I read somewhere that
> mood disorders/depression etc can be a symptom of sticklers too.
But
> I can't for the life of me find this info again. Does anyone know
if
> I'm right in thinking I have read this, and where can I fid the
> info.
> thanks
> Fay
> xxx