I just wanted to let all know I have built a Stickler's Outreach page, in the
hopes of connecting with those affected with Stickler's on the West Coast,
especially in Oregon.

The URL is http://oregonsticklers.homestead.com. Please keep in mind it is still
a work in progress. I would appreciate any constructive feedback and
suggestions.

Shelly Moore - President
Oregon Chapter National Marfan Foundation.

(Tentatively Stickler diagnosed, along with 3 kids {ages 18, 16, 15} also
tentatively Stickler diagnosed, husband Marfan affected.)

Have-A-Heart for Marfan's!
Learn More about Marfan's Syndrome at http://www.marfan.org
Also visit the Oregon web site at http://oregonchapternmf.homestead.com

Stick together to help those with Stickler's Syndrome!
Visit the Stickler Involved People's site at http://www.sticklers.org/sip/
Reaching out to those with Stickler's in Oregon at
http://oregonsticklers.homestead.com


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