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sticklersyndrome · Stickler Syndrome - Stickler Syndrome stories and support
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Reply | Forward Message #79 of 811 |
Hi to all..my sorrow goes out to all of you who were cursed with
this..my name is Meggan and i have stickler syndrome..i was diagnosed
with it in 1994 when i was 16 yrs. old. my children are going to see
a genetist soon to determine if they show any signs..i hope
not..anyways, if anybody would like to chat sometime about this or
just to make friends who share the same issues you can im me on aol
screen name is MegnSam360...and my screen name for yahoo is
PoncesQueen.. msn is Mamasita3477..ok nice to meet you all andf hope
to hear from you soon..thanks Meggan




Thu Mar 6, 2003 3:30 am

poncesqueen
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Message #79 of 811 |
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Hi to all..my sorrow goes out to all of you who were cursed with this..my name is Meggan and i have stickler syndrome..i was diagnosed with it in 1994 when i...
poncesqueen
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Mar 6, 2003
3:30 am

Hi, everybody. I am so happy I found this group. After reading some of the messages, I just knew that this was a wonderful group and so supportive. My name's...
Jennifer Moore
jenns_too_sw...
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Jan 29, 2005
7:52 pm

Hi Jenn, I know what ya mean about not knowing what stickler syndrom was..I didnt know til my son was 15..He had a retinal detachmet and then we found out.He ...
charlene north
gramafsh
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Jan 29, 2005
10:50 pm

hi i have a 5moth old daughter who has cleft palate and she weighed 7 13 when she was born and she at 4mos ol only weighed 10lbs so she last week had to have a...
ashynryanpoo@...
ashynryanpoo
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Jan 30, 2005
4:31 am

Christhoper was a skinny thing when he was born too; 6 lbs, 10 oz. He went down to 6 lbs 3 before we even left the hospital. He's gained a bit of weight, but...
jenns_too_sweet2002
jenns_too_sw...
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Feb 1, 2005
3:22 am
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