No, I in no way was attacking you.
I am experiencing Ians audiologist NOT WANTING to give him hearing
aids until "hes ready for school".
And I am NOT accepting that. He is 17 months old and will only say 1
word and he hasnt even said that in 2 months now.
I was thinking she doesnt wear glasses because her vision dr didnt
want to give them to her UNTIL she was ready for school.
I am heavily involved in young childrens needs here and I have heard
SO MANY horror stories of the Drs not wanting to help young children
"until they are ready for school".
I am experiencing that myself with his hearing aids.
And its a shame when Drs do that, since Children can be behind.

Sorry for the confusion!

On Sat, Apr 18, 2009 at 9:54 AM, Jennifer Ahlman
<jenraylay@...> wrote:
>
>
> ok let's not start attacking each other you don't know my daughters medical
> history. Araya only wears her glasses for school and layni never shows signs
> of vision problems. I always do what's right for my girls And resent the
> thought that I wouldn't and unless you are her doctor or parent you don't
> know what's best for them.
>
> --- On Fri, 4/17/09, Jennifer Oliver <jennifer.worley.oliver@...>
> wrote:
>
> From: Jennifer Oliver <jennifer.worley.oliver@...>
> Subject: Re: [Stickler Syndrome ] hELP!
> To: sticklersyndrome@yahoogroups.com
> Date: Friday, April 17, 2009, 1:40 PM
>
> My son had his first laser eye surgery (to tack the retinas in place
> since his gel in his eyes have already liquified) when he was just
> turned 1 year old, had it again in February 2009, and is scheduled for
> another one in July. Since Stickler's patients have a VERY high
> probability of retina detachment and since he is so young and cant sit
> through a retina exam, his Dr does a gas sedation on him at the eye
> hospital in Birmingham to do a complete exam on him.
> Ian started out at -12 at 6 months old and is now -18 (new Rx 3 months
> ago)..
> We are in the Huntsville, ALabama area.
>
> I am proactive about my son having glasses, my poor baby at 3 months
> old when he started holding things, held them ALL THE WAY up to his
> eyes in order to see anything.
>
> He has had 3 pairs of glasses now, and this new RX, he hasnt even
> SCRATCHED the lens he NEVER takes his glasses off unless hes sleepy
> and is tired and ready for bed.
> IMO, I wouldnt wait on getting my daughter glasses if she needs them in ANY
> way.
>
> Ian hasnt gotten a hearing aid yet since his High Frequencies are
> good, his speech levels arent though. So he is really delayed in his
> speech, hence the speech therapy every 2 weeks.
> I am trying to learn ASL to assist his speech development or at least
> his communications.
>
> Jennifer
>
> Jennifer.Worley. Oliver@gmail. com
>
> On Fri, Apr 17, 2009 at 8:29 AM, Jennifer Ahlman
> <jenraylay@rocketmai l.com> wrote:
>>
>>
>> my older daughter has alot of renal  problems do you know if that is
>> common?
>> My younger daughter will have to have more repairs for her cleft as she
>> has
>> alot of trouble with speech. They also say that my older may need knee
>> replacements by 12. What kind of eye surgery has your son had? My girls so
>> far are only mildly nearsighted Araya (older wears glasses) Layni doesn't
>> yet but may need them in the fall when she starts pre-school.
>>
>> --- On Thu, 4/16/09, aprilflowers718@ yahoo.com <aprilflowers718@
>> yahoo.com>
>> wrote:
>>
>> From: aprilflowers718@ yahoo.com <aprilflowers718@ yahoo.com>
>> Subject: Re: [Stickler Syndrome ] hELP!
>> To: sticklersyndrome@ yahoogroups. com
>> Date: Thursday, April 16, 2009, 9:43 PM
>>
>> My son will be 3 in july. He had a very complex heart condition. He was
>> just
>> showing a lot of joint weakness not so much complaining of pain! His
>> hearing
>> loss is mild but he does wear hearing aids and has had a few eye surgeries
>> and has to have his circumcision re done in may
>> Sent from my BlackBerry Smartphone provided by Alltel
>>
>> -----Original Message-----
>> From: Jennifer Ahlman <jenraylay@rocketma i l.com>
>>
>> Date: Thu, 16 Apr 2009 14:38:49
>> To: <sticklersyndrome@ yahoogroups. com>
>> Subject: Re: [Stickler Syndrome ] hELP!
>>
>> my older daughter had open heart surgery to repair a ASD and my little one
>> had A cath lab to repair a PDA I have told they both god blessed them
>> because they were born "holey" how old is your son? My girls don't have
>> hnearing loss yet but I have heard it is common they both are seen by
>> sveral
>> doctors. does your son have alot of joint pain my seven almost 8 yr old
>> has
>> knee pain
>>
>> --- On Thu, 4/16/09, aprilflowers718@ yahoo.com <aprilflowers718@
>> yahoo.com>
>> wrote:
>>
>> From: aprilflowers718@ yahoo.com <aprilflowers718@ yahoo.com>
>> Subject: Re: [Stickler Syndrome ] hELP!
>> To: sticklersyndrome@ yahoogroups. com
>> Date: Thursday, April 16, 2009, 9:31 PM
>>
>> It is quite a process. My son has had open heart surgery as well as
>> hearing
>> loss and vision impairments and now am working on physical strength in the
>> lower extremeties with braces on his feet
>> Sent from my BlackBerry Smartphone provided by Alltel
>>
>> -----Original Message-----
>> From: Jennifer Ahlman <jenraylay@rocketma i l.com>
>>
>> Date: Thu, 16 Apr 2009 14:27:56
>> To: <sticklersyndrome@ yahoogroups. com>
>> Subject: Re: [Stickler Syndrome ] hELP!
>>
>> Hello crystal,
>> Both of my girls have sticklers ages 2 and 7 and I know what a shock all
>> this can be. As for diagnosis they haven't found the right mutation in my
>> girls genes yet so if the test comes back neg it dosn't mean he dosen't
>> have
>> it just that they have found the right mutation yet. My younger daughter
>> was
>> also born with a cleft palate and we had no idea anything was even wrong
>> untill she was born. She didn't have any breathing problems though. Kids
>> with cleft typically need ear tubes. My daughter is going through speech
>> theapy right now and making some progress. Also have to watch later for
>> eye
>> issues both girls are nearsighted.
>> I know this is alot to process. You have a baby thinks everything is
>> perfect
>> and your world gets turned upside down. I know you'll be able to pull
>> through this just as I was.
>>
>> --- On Thu, 4/16/09, calientecrystal <calientecrystal@ yahoo.com> wrote:
>>
>> From: calientecrystal <calientecrystal@ yahoo.com>
>> Subject: [Stickler Syndrome ] hELP!
>> To: sticklersyndrome@ yahoogroups. com
>> Date: Thursday, April 16, 2009, 5:26 PM
>>
>> hI MY NAME IS CRYSTAL AND MY SON IS 24 hOURS OLD AND HAS BEIN DIAGNOSED
>> WITH
>> STICKLERS, hE HAS A U SHAPED CLEFT PALLETE AND SMALL CHIN ETC. HE IS ON
>> BREATHING TUBES, HAD TO TAKE OUT FEEDING TUBE DUE TO BLOOD IN THE STOMACH
>> WHICH HAS STOPPED BUT THEY DONT KNOW WHAT HAS CAUSED IT. i;M A MESS AND
>> WOULD LIKE TO TALK WITH SOMEONE OR PEOPLE THAT HAS BEEN THREW THIS AND CAN
>> HELP ME GET THREW THIS TIME. ALSO ANY SUGGESTIOND ON HOW TO LAY HIM SO HIS
>> AIRWAYS WILL OPEN UP BETTER WOULD BE GREAT!!
>>
>> [Non-text portions of this message have been removed]
>>
>> [Non-text portions of this message have been removed]
>>
>> [Non-text portions of this message have been removed]
>>
>> [Non-text portions of this message have been removed]
>>
>> [Non-text portions of this message have been removed]
>>
>>
>
> --
> Jennifer Oliver
>
> [Non-text portions of this message have been removed]
>
>



--
Jennifer Oliver