Hi Crystal.
My son is 17 months old and was diagnosed at 6 months.
The only way they can diagnose a child is through DNA and that takes usually 2-3
weeks. They might have an idea that he has it, but DNA is the only way.
Ian didnt have the cleft pallet or breathing issues.
He now has vision and hearing issues along with Asthma.
The best way to let them sleep is in a semi sortta sitting up pattern.
Ian would sleep best in his infant car seat sitting up, he would breathe better.
Let me know how it goes.


--- In sticklersyndrome@yahoogroups.com, "calientecrystal" <calientecrystal@...>
wrote:
>
> hI MY NAME IS CRYSTAL AND MY SON IS 24 hOURS OLD AND HAS BEIN DIAGNOSED WITH
STICKLERS, hE HAS A U SHAPED CLEFT PALLETE AND SMALL CHIN ETC. HE IS ON
BREATHING TUBES, HAD TO TAKE OUT FEEDING TUBE DUE TO BLOOD IN THE STOMACH WHICH
HAS STOPPED BUT THEY DONT KNOW WHAT HAS CAUSED IT. i;M A MESS AND WOULD LIKE TO
TALK WITH SOMEONE OR PEOPLE THAT HAS BEEN THREW THIS AND CAN HELP ME GET THREW
THIS TIME. ALSO ANY SUGGESTIOND ON HOW TO LAY HIM SO HIS AIRWAYS WILL OPEN UP
BETTER WOULD BE GREAT!!
>