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looking for adults with sticklers   Message List  
Reply | Forward Message #712 of 811 |
RE: [Stickler Syndrome ] looking for adults with sticklers


Hi Penny,
Iam not an adult with sticklers but my son is the only one of 5 children with
it.We have tried to trace it but cant find it in either family sides.
What are your symptoms? He has retnal detatchments,glucoma but no others so
far.We were diognosed when he was 14 he is now 20 and legaly blind.
If you would like to chat write back..take care,Charlene



To: sticklersyndrome@...: pr_lockridge@...: Tue, 16
Sep 2008 12:00:51 -0700Subject: [Stickler Syndrome ] looking for adults with
sticklers




Hi. I was born in 1961 with sticklers although we did not know that it was
sticklers until two years ago. I am the oldest of 2 and my youger brother is
fine. I am the only person on either of my parents side that has sticklers. I
would like to chat with other adults like myself.Penny[Non-text portions of this
message have been removed]





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Tue Sep 16, 2008 7:16 pm

gramafsh
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Message #712 of 811 |
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Hi.   I was born in 1961 with sticklers although we did not know that it was sticklers until two years ago.  I am the oldest of 2 and my youger brother is...
PR Lockridge
pr_lockridge
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Sep 16, 2008
7:07 pm

Hi Penny, Iam not an adult with sticklers but my son is the only one of 5 children with it.We have tried to trace it but cant find it in either family sides. ...
charlene north
gramafsh
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Sep 16, 2008
7:16 pm

Hi Penny, My name is Marianne and I have Sticklers and Pierre Robin Syndrome. I'm not sure what age I was diagnosed.I'm 37 and live in Australia. I have a 17...
fire_n_ice_1970
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Sep 17, 2008
2:50 am
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