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Questions about Stickler's, but can't figure out yahoo messenger   Message List  
Reply | Forward Message #627 of 810 |
Hi Valerie- I am sorry I can't figure out the Yahoo messenger. My son
is only 3 months old but has been diagnosed with Stickler's-I was
wondering how Stickler's has progressed in other people's children as
we had never even heard of it prior to our son being diagnosed- there
is no family history. We have been told of all of the different things
that could happen with his vision, hearing, joints, etc, and that he
will have to avoid sports. Has this been the case for Brennon? Thank
you for any insight you can give us.
-Peggy




Thu May 15, 2008 11:02 pm

peggreen13
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Message #627 of 810 |
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Hi Valerie- I am sorry I can't figure out the Yahoo messenger. My son is only 3 months old but has been diagnosed with Stickler's-I was wondering how...
peggreen13
Offline Send Email
May 15, 2008
11:02 pm

Hi Peggy...it's okay..it took me 4 months to explain email to my mother in law..LOL. Brennon was not diagnosed with it until he started going blind in his...
abintra2004@...
valinmi31
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May 16, 2008
2:50 am

Hi Peggy My name is Jacqui. I have a son who is turning 2 on June 8. He was diagnosed with Sticklers at birth. We got the official dx when he was about 1. We...
Jacqui
momofbksa2001
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May 21, 2008
3:16 pm

That was awesome, Jacqui!!! I agree that you have to let them be kids.? That's first and foremost.? I will support Brennon in almost anything he does, and with...
abintra2004@...
valinmi31
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May 22, 2008
2:46 am

Thank you all for the explanations- I really appreciate hearing about this as we had never heard of Sticklers or known anyone with it. We actually just got out...
peggreen13
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May 25, 2008
1:48 am
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