Thanks for forwarding this to me Ruben.

I will get in touch with Jacqui.

Mario
--- Ruben moran <tacoelarco_89@...> wrote:

> he jacqui i am not Mario i am Ruben but nice to neet
> you.
>
> Jacqui <momofbksa2001@...> wrote: Hi
> Mario
> Nice to meet you. I am Jacqui. I have a baby that
> has Sticklers. He will be 2 years in June. Samuel
> was born with Low Frequency hearing loss and joint
> problems that has lead to Arthritis. He now has
> myopia and suspect retinal problems. We see the
> retinal specialist in a couple weeks.
> When I get some money, I will buy your book and read
> it. It sounds so great just from what I read on your
> links. Its not like there are very many of us in
> this Stickler's group. Samuel's father has Stickers
> also. He has already lost one eye and majority of
> the other one. Other than the family and this group,
> I dont know anyone else with Sticklers.
>
> God Bless
> Jacqui
>
> My son, Shaun, was diagnosed with Stickler's
> Syndrome.
>
> He had cataracts, hearing problems, a cleft palate
> of
> the soft tissue, and very maloccluded teeth,
> requiring
> him to wear braces. At age thirteen, he developed
> scoliosis that progressed to a 50% curve and needed
> surgery for it.
>
> My name is Mario S. Fedele, and I've written a
> memoir,
> titled "God's Gift," to chronicle his hardships.
>
> If anyone would like to discuss our case, please
> drop
> me a line!
>
> Mario S. Fedele
>
> <a href="http://lilypie.com"><img
> src="http://by.lilypie.com/e6T6m7.png" alt="Lilypie
> 6th to 18th Ticker" border="0" width="400"
> height="80" /></a>
>
> Blaine 14 Incoming Freshman
> Kelly 13 Freshman also....ADHD, OCD, ODD crazy kid
> Shelby 11 No problem child
> Aliya 8 glad she isnt the baby anymore
> Samuel 1yr(June) Sticklers Syndrome, hes a great
> baby and I would never want any other baby.
>
>
> ---------------------------------
> Be a better friend, newshound, and know-it-all with
> Yahoo! Mobile. Try it now.
>
> [Non-text portions of this message have been
> removed]
>
>
>
>
>
>
> ---------------------------------
> Be a better friend, newshound, and know-it-all with
> Yahoo! Mobile. Try it now.
>
> [Non-text portions of this message have been
> removed]
>
>


Mario S. Fedele
God's Gift - A touching memoir of overcoming insurmountable odds!
http://www.freewebs.com/mario5o/
http://www.champagnebooks.com/
http://www.myspace.com/mario5o
http://www.bestbookdeal.com/book/compare/1897261888/


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