he jacqui i am not Mario i am Ruben but nice to neet you.

Jacqui <momofbksa2001@...> wrote: Hi Mario
Nice to meet you. I am Jacqui. I have a baby that has Sticklers. He will be 2
years in June. Samuel was born with Low Frequency hearing loss and joint
problems that has lead to Arthritis. He now has myopia and suspect retinal
problems. We see the retinal specialist in a couple weeks.
When I get some money, I will buy your book and read it. It sounds so great just
from what I read on your links. Its not like there are very many of us in this
Stickler's group. Samuel's father has Stickers also. He has already lost one eye
and majority of the other one. Other than the family and this group, I dont know
anyone else with Sticklers.

God Bless
Jacqui

My son, Shaun, was diagnosed with Stickler's Syndrome.

He had cataracts, hearing problems, a cleft palate of
the soft tissue, and very maloccluded teeth, requiring
him to wear braces. At age thirteen, he developed
scoliosis that progressed to a 50% curve and needed
surgery for it.

My name is Mario S. Fedele, and I've written a memoir,
titled "God's Gift," to chronicle his hardships.

If anyone would like to discuss our case, please drop
me a line!

Mario S. Fedele

<a href="http://lilypie.com"><img src="http://by.lilypie.com/e6T6m7.png"
alt="Lilypie 6th to 18th Ticker" border="0" width="400" height="80" /></a>

Blaine 14 Incoming Freshman
Kelly 13 Freshman also....ADHD, OCD, ODD crazy kid
Shelby 11 No problem child
Aliya 8 glad she isnt the baby anymore
Samuel 1yr(June) Sticklers Syndrome, hes a great baby and I would never want any
other baby.


---------------------------------
Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Non-text portions of this message have been removed]






---------------------------------
Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Non-text portions of this message have been removed]