Hi Mario
Nice to meet you. I am Jacqui. I have a baby that has Sticklers. He will be 2
years in June. Samuel was born with Low Frequency hearing loss and joint
problems that has lead to Arthritis. He now has myopia and suspect retinal
problems. We see the retinal specialist in a couple weeks.
When I get some money, I will buy your book and read it. It sounds so great
just from what I read on your links. Its not like there are very many of us in
this Stickler's group. Samuel's father has Stickers also. He has already lost
one eye and majority of the other one. Other than the family and this group, I
dont know anyone else with Sticklers.

God Bless
Jacqui






My son, Shaun, was diagnosed with Stickler's Syndrome.

He had cataracts, hearing problems, a cleft palate of
the soft tissue, and very maloccluded teeth, requiring
him to wear braces. At age thirteen, he developed
scoliosis that progressed to a 50% curve and needed
surgery for it.

My name is Mario S. Fedele, and I've written a memoir,
titled "God's Gift," to chronicle his hardships.

If anyone would like to discuss our case, please drop
me a line!

Mario S. Fedele







<a href="http://lilypie.com"><img src="http://by.lilypie.com/e6T6m7.png"
alt="Lilypie 6th to 18th Ticker" border="0" width="400" height="80" /></a>

Blaine 14 Incoming Freshman
Kelly 13 Freshman also....ADHD, OCD, ODD crazy kid
Shelby 11 No problem child
Aliya 8 glad she isnt the baby anymore
Samuel 1yr(June) Sticklers Syndrome, hes a great baby and I would never want
any other baby.



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