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My son and Stickler's syndrome...   Message List  
Reply | Forward Message #609 of 811 |
Hello, everyone!

My son, Shaun, was diagnosed with Stickler's Syndrome.

He had cataracts, hearing problems, a cleft palate of
the soft tissue, and very maloccluded teeth, requiring
him to wear braces. At age thirteen, he developed
scoliosis that progressed to a 50% curve and needed
surgery for it.

My name is Mario S. Fedele, and I've written a memoir,
titled "God's Gift," to chronicle his hardships.

If anyone would like to discuss our case, please drop
me a line!




Mario S. Fedele
God's Gift - A touching memoir of overcoming insurmountable odds!
http://www.freewebs.com/mario5o/
http://www.champagnebooks.com/
http://www.myspace.com/mario5o
http://www.bestbookdeal.com/book/compare/1897261888/


__________________________________________________________________
Looking for the perfect gift? Give the gift of Flickr!

http://www.flickr.com/gift/



Tue Mar 25, 2008 4:42 am

mario55o
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Message #609 of 811 |
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Hello, everyone! My son, Shaun, was diagnosed with Stickler's Syndrome. He had cataracts, hearing problems, a cleft palate of the soft tissue, and very...
Mario Fedele
mario55o
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Mar 25, 2008
4:43 am

Hi Mario Nice to meet you. I am Jacqui. I have a baby that has Sticklers. He will be 2 years in June. Samuel was born with Low Frequency hearing loss and joint...
Jacqui
momofbksa2001
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Mar 28, 2008
3:41 pm

he jacqui i am not Mario i am Ruben but nice to neet you. Jacqui <momofbksa2001@...> wrote: Hi Mario Nice to meet you. I am Jacqui. I have a...
Ruben moran
tacoelarco_89
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Mar 29, 2008
6:11 pm

Thanks for forwarding this to me Ruben. I will get in touch with Jacqui. Mario ... Mario S. Fedele God's Gift - A touching memoir of overcoming insurmountable...
Mario Fedele
mario55o
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Mar 29, 2008
10:20 pm

Jacqui, Thank you so much for responding to my post. Sorry to hear that your son has Stickler's. I see some of his symptoms mirrored in my son. Though he...
Mario Fedele
mario55o
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Mar 29, 2008
10:56 pm
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