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Daignosis of Sticklers in newborn --possible or not??   Message List  
Reply | Forward Message #589 of 810 |
Re: [Stickler Syndrome ] Daignosis of Sticklers in newborn --possible or not??

Hi
Is anyone having issues with babies and myopia? My son who was diagnosed with
Sticklers at birth is now 19 months old. Just recently he started showing signs
of not seeing right. I took him to the doctor and he went from +1 in both eyes
last year to -4 diaptor now. He needs glasses and the rest I am scared of. IS
anyone else experinecing this or can anyone help me sift through this
information???

Thanks ahead of time
Jacqui


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[Non-text portions of this message have been removed]
Sat Jan 5, 2008 6:45 pm

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momofbksa2001
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Forward 		Message #589 of 810 |
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Hi All, Thiis is the awesome support groups for the anxious parents like me. My son was born with a cleft palate. which is associted with Pierre Robin... 		sarahahm
Offline Send Email 		Mar 23, 2007
3:31 pm

Hi I have a 9 month old with SS. He doesnt have any eye problems as of right now. He does have mild/moderate hearing loss and has been since birth. Samuel...
Jacqui
momofbksa2001
Offline Send Email 		Mar 23, 2007
9:15 pm

Thanks for your reply MY son is 7 weeks old. He doesn't have any facial features associted with sticklers realting nose, cheeks or eyes, except for his pierre ...
sarahahm
Offline Send Email 		Mar 26, 2007
5:03 pm

Sticklers runs in my husbands family. My husband has SS. He suffers mostly from eye problems. He has lost one eye and nearly blind in the other. He's got...
Jacqui
momofbksa2001
Offline Send Email 		Mar 27, 2007
12:39 am

This is my son Samuel who was DX with SS. Jacqui <a href="http://lilypie.com"><img src="http://by.lilypie.com/e6T6m7.png" alt="Lilypie 6th to 18th Ticker"...
Jacqui
momofbksa2001
Offline Send Email 		Mar 27, 2007
12:58 am

Thanks for your reply, however I couldn't view the pic. So if you could send the link again, Best wishes to you and your son. Sara ... ...
Sarah Ahmad
sarahahm
Offline Send Email 		Mar 28, 2007
7:53 pm

Hi Is anyone having issues with babies and myopia? My son who was diagnosed with Sticklers at birth is now 19 months old. Just recently he started showing...
Jacqui
momofbksa2001
Offline Send Email 		Jan 5, 2008
6:45 pm

Hi Jacqui, Have your son's eye Dr. check for retinal detachments it is very common in Stickler kids. My son had his in 1st grade, and now has a cateract in...
Becky
becmorhei
Offline Send Email 		Jan 5, 2008
7:47 pm

Hi Jacqui My niece was 3 months when her sight was tested and she had -9 1/4 she had glasses from 4 months, she is now 7 months old, getting on fine with...
Emma Twyman
emmatwyman
Offline Send Email 		Jan 7, 2008
4:24 pm

Our 1 year old just had her cleft palate repair and tubes put in her ears. Did anyone have any experience with novel and less uncomfortable methods of keeping...
Marla Lemonik
raitzarose
Offline Send Email 		Jan 11, 2008
6:54 pm

Hi, My son is about to have the exact same surgery in Febuary, my husband and I are very nervous about the surgery and the post surgery. I would really like to...
Victoria Adamson
tora1209
Offline Send Email 		Jan 11, 2008
7:07 pm

Pre-surgery was nothing particularly stressful. The pre-op testing (blood test = angry baby, lots of screaming), and getting the paperwork from the ...
Marla Lemonik
raitzarose
Offline Send Email 		Jan 13, 2008
2:25 am
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