Hi Omar and I have a son who's 14 who has it too. You'd be a good mentor to
him! :) He has a Myspace page and on mine, I have all of his trials and
tribulations caused by Stickler's. He's also blind in one eye, with the
permanent
retinal detachment, being in his right eye, and the left one has been repaired.
My Myspace page is http://www.myspace.com/mommaof5inva. There, you can see
Brennon's and he's second on my list. :) Thanks and talk soon!!!!! Valerie



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