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Re: [Stickler Syndrome ] I'm new too :)   Message List  
Reply | Forward Message #523 of 811 |
Re: [Stickler Syndrome ] I'm new too :)

Hi!

I have a son that was born with PRS and the Genetic
Dr. took my son's blood, my blood, my husband's blood,
and my other son's blood, for the Sticklers Test last
year (2006).The results came back that both of my boys
and myself have Sticklers but not my husband. The Dr.
said that my other son that was born healthy and
myself have a very very mild case of Sticklers and my
son that has PRS has moderatd case of Sticklers. So
far my son with PRS, his eyes and ears are good.

His Genetic Dr. and his Pediatrician knows about
Sticklers. Thank Goodness for that.

Nancy
--- abintra2004@... wrote:

> I know what you mean!! I mean, about the doctor's
> not knowing what it is. I
> told our pediatrician that Brennon had it (when he
> was 10) and he had to get
> out his little FLIPPY book (reference book) to see
> what it was! :) That's not a
> good feeling but then I guess it's good they're
> trying to learn about
> it..LOL. :) God bless, Valerie
>
>
> **************************************
> See what's free
> at http://www.aol.com.
>
>
> [Non-text portions of this message have been
> removed]
>
>




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Wed Jun 27, 2007 4:16 pm

nancyb1012
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Message #523 of 811 |
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I know what you mean!! I mean, about the doctor's not knowing what it is. I told our pediatrician that Brennon had it (when he was 10) and he had to get out...
abintra2004@...
valinmi31
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Jun 27, 2007
3:45 pm

whats terrible is when you as parents has to educate the doctor on SS. I have been to doctors where I mentioned it and I had to go into detail what the...
Jacqui
momofbksa2001
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Jun 27, 2007
4:15 pm

Hi! I have a son that was born with PRS and the Genetic Dr. took my son's blood, my blood, my husband's blood, and my other son's blood, for the Sticklers Test...
Nancy Bryant
nancyb1012
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Jun 27, 2007
4:18 pm

Heck yes, or just walk around to Doctor's offices..LOL!!!!!!! Brennon was on the news with it and most people still hadn't heard of it..LOL! We have to educate...
abintra2004@...
valinmi31
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Jun 27, 2007
4:24 pm
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