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Re: [Stickler Syndrome ] I'm new too :)   Message List  
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Re: [Stickler Syndrome ] I'm new too :)

whats terrible is when you as parents has to educate the doctor on SS. I have
been to doctors where I mentioned it and I had to go into detail what the
symptoms are. ITs true not many has heard of it let alone know what it is. My
pediatrician does know about SS which I am thankful for. Thats about it. We
should make a flyer and hand it out at our appt's. LOL

Jacqui






<a href="http://lilypie.com"><img src="http://by.lilypie.com/e6T6m7.png"
alt="Lilypie 6th to 18th Ticker" border="0" width="400" height="80" /></a>

Blaine 14 graduating from 8th grade this year
Kelly 13 graduation from 8th grade too....ADHD, OCD, ODD crazy kid
Shelby 11 No problem child
Aliya 8 (almost in March) glad she isnt the baby anymore
Samuel 8 months such a happy, handsome little baby


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Wed Jun 27, 2007 4:14 pm

momofbksa2001
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Message #522 of 811 |
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I know what you mean!! I mean, about the doctor's not knowing what it is. I told our pediatrician that Brennon had it (when he was 10) and he had to get out...
abintra2004@...
valinmi31
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Jun 27, 2007
3:45 pm

whats terrible is when you as parents has to educate the doctor on SS. I have been to doctors where I mentioned it and I had to go into detail what the...
Jacqui
momofbksa2001
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Jun 27, 2007
4:15 pm

Hi! I have a son that was born with PRS and the Genetic Dr. took my son's blood, my blood, my husband's blood, and my other son's blood, for the Sticklers Test...
Nancy Bryant
nancyb1012
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Jun 27, 2007
4:18 pm

Heck yes, or just walk around to Doctor's offices..LOL!!!!!!! Brennon was on the news with it and most people still hadn't heard of it..LOL! We have to educate...
abintra2004@...
valinmi31
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Jun 27, 2007
4:24 pm
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