I know what you mean!! I mean, about the doctor's not knowing what it is. I
told our pediatrician that Brennon had it (when he was 10) and he had to get
out his little FLIPPY book (reference book) to see what it was! :) That's not a
good feeling but then I guess it's good they're trying to learn about
it..LOL. :) God bless, Valerie
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