Hi Victoria and I have been a new member to the group for about 3 months now
but our son has Stickler's and I"m on Myspace if you are, too. My page is
http://www.myspace.com/mommaof5inva. I have blogs and videos about it and
Brennon, our 14 year old. He's from my first marriage and it's hereditary on
that
side, so we don't have to worry about our other children getting it. :) Talk
soon
and what have you been through already? Brennon must have been born with the
cleft palette but it wasn't detected or even noticable, until we found out
about his retinal detachments at the age of 10. Talk soon, Valerie



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