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sticklersyndrome · Stickler Syndrome - Stickler Syndrome stories and support
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Reply | Forward Message #517 of 810 |
Hi everyone. Just wanted to introduce myself. My name in Victoria and I
have a 6 month old son who was born with Sticklers Syndrome. We have
been through many things in just 6 months and I look forward to
learning from other parents who have faced the many challenges our
family has so far.
Wed Jun 27, 2007 3:38 am

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tora1209
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Forward 		Message #517 of 810 |
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Hi everyone. Just wanted to introduce myself. My name in Victoria and I have a 6 month old son who was born with Sticklers Syndrome. We have been through many... 		tora1209
Offline Send Email 		Jun 27, 2007
3:38 am

Hi Victoria My name is Jacqui. I have a baby that just turned the BIG 1 yr a few days ago. Samuel was born with SS. His father has it as well as many members...
Jacqui
momofbksa2001
Offline Send Email 		Jun 27, 2007
6:08 am

Hi Jacqui It was great to hear from you, I also am glad that you have a young baby it helps to know that we can share experiences. The joint popping is awful,...
tora1209
Offline Send Email 		Jun 30, 2007
2:13 am

Hi Victoria, If you don't mind can I ask did your son's stickler daignosis based on clinical findings or did you guys had a blood test done on him? I have a 5...
Sarah Ahmad
sarahahm
Offline Send Email 		Jun 30, 2007
2:57 am

Hello all !!! My name is Ann-Marie and my 6 year old daughter, Lauren, has Sticklers. Lauren (who we adopted when she was 18 months old) has PRS, high...
Ann-Marie Fosselman
anniefosselman
Offline Send Email 		Jun 30, 2007
12:40 pm

Ann-Marie, I would LOVE it if you could send me the info you have. mommajnine @ gmail.com We are very new at SS. We haven't even had our follow up appointment...
Janine
mommajnine
Offline Send Email 		Jul 1, 2007
12:04 am

Ann-Marie It would be awesome , if you could share this info with all of us, as sticklers seems to be such a rare condition, even my son's pediatrician had to...
Sarah Ahmad
sarahahm
Offline Send Email 		Jul 1, 2007
2:11 am

Ann-Marie It would be awesome , if you could share this info with all of us, as sticklers seems to be such a rare condition, even my son's pediatrician had to...
Sarah Ahmad
sarahahm
Offline Send Email 		Jul 1, 2007
2:11 am

Hello all!! I will definately share this. It was such a blessing to receive it when I did. I will have my husband help me with scanning it and sending it...
Ann-Marie Fosselman
anniefosselman
Offline Send Email 		Jul 2, 2007
12:33 pm

Hello!! We are in Brooklyn Park, just outside the Twin Cities. am Janine <mommajnine@...> wrote: Ann-Marie, I would LOVE it if you could send me the...
Ann-Marie Fosselman
anniefosselman
Offline Send Email 		Jul 4, 2007
1:07 am

We live in northern minnesota, small town called Thief River Falls. I would love to learn more about this Sticklers conference also, if you don't mind. Sara,...
Sara
saramcarter69
Offline Send Email 		Jul 4, 2007
1:52 am

Hey, and isn't Minnesota where they're having the annual Stickler's Involved People conference this year? Go to http://www.sticklers.org. and there's all kinds...
abintra2004@...
valinmi31
Offline Send Email 		Jul 4, 2007
3:42 am
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