I would also like to see additional info on speech. We're adopting a young lady
that was diagnosed with SS at age 13. We've done extensive speech therapy but
they've stopped therapy saying she's hit a plateau and can't go any further.
It's still very difficult to understand her and she cannot function in public.
She has a sub-mucous cleft palate. I've been told her cleft palate has nothing
to do with why she can't talk but nobody can say why she can't?!?! It's
frustrating for all of us to try to understand what she says.

MOM (Lori Taylor)

Sara <saracarter69@...> wrote:
My name is Sara, 2 of my kids were born with Sticklers along with the
cleft palates and small jaws. My son is almost 9, and my daughter is
almost 5. I'm just curious if anyone elses children have really severe
speech impediments? My sons is really bad, and hes been in speech
therapy for 7 years. Hes also had to orchea (sp?) surgeries to try and
help with it, but neither one has worked. Just wondering if anyone has
any ideas on how I can help him, hes so angry because of it.
Thanks so much.
Sara






SMILE ~ It makes people wonder!
A cheerful look brings joy to the heart, and good news gives health to the
bones. Proverbs 15:30


[Non-text portions of this message have been removed]