Search the web
Sign In
New User? Sign Up
sticklersyndrome · Stickler Syndrome - Stickler Syndrome stories and support
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Hear how Yahoo! Groups has changed the lives of others. Take me there.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Mother of Two Stickler kids   Message List  
Reply | Forward Message #507 of 810 |
Re: [Stickler Syndrome ] Mother of Two Stickler kids

Hello Sara

I am 33 years old. I too was born with a cleft palate
and had to have speech therapy. Mostly what they told
my mom was to have me keep talking and practice alot
at home singing,games,homework. Try and make it as
fun for your son as you can. If you have a pet have
him read to the pet or to you. I'm sorry that he
feels so angry but as he grows hopefully he will see
that no one is perfect and that if he likes history he
could look up books or on the web people in history
that have struggled but overcame. Have faith and
trust that the Lord will guide you and your son. I
know I wouldn't have made it without that for a loving
mom. Your son has the mom part. Good luck.

Cathy


--- Sara <saracarter69@...> wrote:

> My name is Sara, 2 of my kids were born with
> Sticklers along with the
> cleft palates and small jaws. My son is almost 9,
> and my daughter is
> almost 5. I'm just curious if anyone elses children
> have really severe
> speech impediments? My sons is really bad, and hes
> been in speech
> therapy for 7 years. Hes also had to orchea (sp?)
> surgeries to try and
> help with it, but neither one has worked. Just
> wondering if anyone has
> any ideas on how I can help him, hes so angry
> because of it.
> Thanks so much.
> Sara
>
>




________________________________________________________________________________\
____Luggage? GPS? Comic books?
Check out fitting gifts for grads at Yahoo! Search
http://search.yahoo.com/search?fr=oni_on_mail&p=graduation+gifts&cs=bz



Sun May 20, 2007 7:29 pm

catangel7
Offline Offline
Send Email Send Email

Forward
Message #507 of 810 |
Expand Messages Author Sort by Date

My name is Sara, 2 of my kids were born with Sticklers along with the cleft palates and small jaws. My son is almost 9, and my daughter is almost 5. I'm just...
Sara
saramcarter69
Offline Send Email
May 20, 2007
1:40 pm

Hello Sara I am 33 years old. I too was born with a cleft palate and had to have speech therapy. Mostly what they told my mom was to have me keep talking and...
Cathy Turk
catangel7
Offline Send Email
May 20, 2007
7:29 pm

I would also like to see additional info on speech. We're adopting a young lady that was diagnosed with SS at age 13. We've done extensive speech therapy but...
Lori Taylor
daveloritaylor
Offline Send Email
May 21, 2007
2:39 am

Hello all!!! Our daughter, Lauren, has Sticklers and she too had the sub-mucous cleft palate and Pierre Robin sysdrome. She had her first palate repair at 18...
Ann-Marie Fosselman
anniefosselman
Offline Send Email
May 21, 2007
5:01 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help