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Daignosis of Sticklers in newborn --possible or not??   Message List  
Reply | Forward Message #496 of 810 |
Re: [Stickler Syndrome ] pic of Samuel

Thanks for your reply, however I couldn't view the
pic.
So if you could send the link again,

Best wishes to you and your son.
Sara
--- Jacqui <momofbksa2001@...> wrote:

> This is my son Samuel who was DX with SS.
>
> Jacqui
>
>
>
>
>
>
> <a href="http://lilypie.com"><img
> src="http://by.lilypie.com/e6T6m7.png" alt="Lilypie
> 6th to 18th Ticker" border="0" width="400"
> height="80" /></a>
>
> Blaine 14 graduating from 8th grade this year
> Kelly 13 graduation from 8th grade too....ADHD,
> OCD, ODD crazy kid
> Shelby 11 No problem child
> Aliya 8 (almost in March) glad she isnt the baby
> anymore
> Samuel 8 months such a happy, handsome little
> baby
>
>
> ---------------------------------
> TV dinner still cooling?
> Check out "Tonight's Picks" on Yahoo! TV.
>
> [Non-text portions of this message have been
> removed]
>
>




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Wed Mar 28, 2007 7:51 pm

sarahahm
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Message #496 of 810 |
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Hi All, Thiis is the awesome support groups for the anxious parents like me. My son was born with a cleft palate. which is associted with Pierre Robin...
sarahahm
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Mar 23, 2007
3:31 pm

Hi I have a 9 month old with SS. He doesnt have any eye problems as of right now. He does have mild/moderate hearing loss and has been since birth. Samuel...
Jacqui
momofbksa2001
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Mar 23, 2007
9:15 pm

Thanks for your reply MY son is 7 weeks old. He doesn't have any facial features associted with sticklers realting nose, cheeks or eyes, except for his pierre ...
sarahahm
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Mar 26, 2007
5:03 pm

Sticklers runs in my husbands family. My husband has SS. He suffers mostly from eye problems. He has lost one eye and nearly blind in the other. He's got...
Jacqui
momofbksa2001
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Mar 27, 2007
12:39 am

This is my son Samuel who was DX with SS. Jacqui <a href="http://lilypie.com"><img src="http://by.lilypie.com/e6T6m7.png" alt="Lilypie 6th to 18th Ticker"...
Jacqui
momofbksa2001
Offline Send Email
Mar 27, 2007
12:58 am

Thanks for your reply, however I couldn't view the pic. So if you could send the link again, Best wishes to you and your son. Sara ... ...
Sarah Ahmad
sarahahm
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Mar 28, 2007
7:53 pm

Hi Is anyone having issues with babies and myopia? My son who was diagnosed with Sticklers at birth is now 19 months old. Just recently he started showing...
Jacqui
momofbksa2001
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Jan 5, 2008
6:45 pm

Hi Jacqui, Have your son's eye Dr. check for retinal detachments it is very common in Stickler kids. My son had his in 1st grade, and now has a cateract in...
Becky
becmorhei
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Jan 5, 2008
7:47 pm

Hi Jacqui My niece was 3 months when her sight was tested and she had -9 1/4 she had glasses from 4 months, she is now 7 months old, getting on fine with...
Emma Twyman
emmatwyman
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Jan 7, 2008
4:24 pm

Our 1 year old just had her cleft palate repair and tubes put in her ears. Did anyone have any experience with novel and less uncomfortable methods of keeping...
Marla Lemonik
raitzarose
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Jan 11, 2008
6:54 pm

Hi, My son is about to have the exact same surgery in Febuary, my husband and I are very nervous about the surgery and the post surgery. I would really like to...
Victoria Adamson
tora1209
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Jan 11, 2008
7:07 pm

Pre-surgery was nothing particularly stressful. The pre-op testing (blood test = angry baby, lots of screaming), and getting the paperwork from the ...
Marla Lemonik
raitzarose
Offline Send Email
Jan 13, 2008
2:25 am
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