Hi
I am interested in hearing people's experiences re child birth.
I am considering having children but have drawn the following
conclusions: there is a 50:50 chance of passing stickler on to my
children; that pre natal testing to ascertain whether a baby would
be born with stickler is not going to happen due to lack of
resources in the UK/complex nature of finding the faulty gene (which
has a knock on effect re IVF; that a c section would have to be te
only option due to strain on the retina during child birth. I have
also recently wondered whether the carrying of a child during
pregnancy can cause retinal problems too due to the weight and
strain ( I read about one woman who seems to have expereineced this
but don't know if it's a common problem).
Has anyone any thoughts on this or can tell me of their own
experiences (positive or negative) as I am trying to build a
complete picture before making a choice as I have also thought very
much about adoption.
A bit of my background info:
I am 37, was diagnosed with stickler at 17 (seem to be the only one
in my family, but who knows?)and have had several ops on my retinas-
both eyes- with the loss of all sight to one eye when aged 23, and
have a cataract on right eye but vision generally ok but myopic.
More recently I am having hearing problems in left ear.
Would like to hear from anyone in similar situation
Bev
Yorkshire, UK