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Re: [Stickler Syndrome ] Re: New and looking for support   Message List  
Reply | Forward Message #468 of 811 |
Re: [Stickler Syndrome ] Re: New and looking for support

Hi Carole,

I wore glasses when I was 6 months old. If you can get your son glasses it
will be to his benefit. If the Dr says no I would check with a diff dr. If he
cant see then he wont want to explore and this will limit his learning and
growth ability.

Good luck....

Mary


[Non-text portions of this message have been removed]
Wed Nov 8, 2006 3:06 am

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margaritavil...
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Forward 		Message #468 of 811 |
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Hi How good is it to have someone to chat to in the UK about SS as most people I have found are from Aus or USA and their way of treating people id so... 		carole pilgrim
sillypilly51
Offline Send Email 		Oct 27, 2006
10:14 pm

I have a 4 month old with SS also. He got it from his fathers side as well. His eyes seem good at the moment but he has low frequency hearing loss. He also...
Jacqui
momofbksa2001
Offline Send Email 		Oct 27, 2006
10:34 pm

hi carole. glad you found the info, that can be most useful. Are you on about wendy hughes' book? i have not actually read it bt can highly recommend it and i...
Amy
amwshamws
Offline Send Email 		Oct 29, 2006
9:58 am

Hello Carole, I live in London , my daughter is now three and she has glasses since she was 10 months. In the UK there is a support group for SS. I will give...
miranda barone
baronemiranda
Offline Send Email 		Nov 6, 2006
9:48 pm

Dear Carole, I just read Amy told you about the support group and the book The Elusive Syndrome ,I read it and I really reccomend it. My daughter is going to...
miranda barone
baronemiranda
Offline Send Email 		Nov 6, 2006
10:01 pm

Hello. I have had the cryotherapy in Cambridge on both eyes. It worked successfully on my left eye but my right eye has since detached twice and now I have...
Amy
amwshamws
Offline Send Email 		Nov 7, 2006
11:44 pm

Hi Carole, I wore glasses when I was 6 months old. If you can get your son glasses it will be to his benefit. If the Dr says no I would check with a diff dr....
MRH3125@...
margaritavil...
Offline Send Email 		Nov 8, 2006
3:11 am
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