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Hello Everyone   Message List  
Reply | Forward Message #460 of 811 |
Re: [Stickler Syndrome ] Re: Hello Everyone

im from indiana i dont know of any support groups email me at
valeriemartin5@...



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Sat Oct 28, 2006 6:50 pm

kate_willaims
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Message #460 of 811 |
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My name is Sarah and my son Ryan has PRS and Stickler. He is now five years old. Ryan has had the mandibular distraction (at 3 weeks old) that brought his...
sarah_maria_43213
sarah_maria_...
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Oct 28, 2006
12:08 am

... weeks ... trickiest ... may ... had ... there ... hi sarah, my daughter, now 19 was born with a cleft palate, PRS,and stickler syndrome.My other daughter,...
deb
caliroze2002
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Oct 28, 2006
4:46 am

Hi Sarah! I to live in Indiana. I sure don't know of any support groups around here. I have 2 daughters with Stickler. I also have it as well. My oldest...
Heather
mattnheatherr
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Oct 28, 2006
12:21 pm

Thank God I am not the lone one in the state! Right now Ryan's care has been at Riley. While I find a certain measure of relief that they are familiar with...
sarah_maria_43213
sarah_maria_...
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Oct 28, 2006
5:11 pm

Hi Debby I am so glad I am not the only one! Is she still having platelet issues? When I saw Ryan begin to bruise it was a very scary thing. We were still so...
sarah_maria_43213
sarah_maria_...
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Oct 28, 2006
5:30 pm

im from indiana i dont know of any support groups email me at valeriemartin5@... ... Check out the New Yahoo! Mail - Fire up a more powerful email and...
kate willaims
kate_willaims
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Oct 28, 2006
6:53 pm

Hi Sarah and Heather, I also have a form of SS. I am 43 and live in the Chicago area. I was diagnosed with it when I was about 29 or 30 as I developed...
MRH3125@...
margaritavil...
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Oct 29, 2006
3:19 pm
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