sticklersyndrome : Message: Re: [Stickler Syndrome ] Re: Hello Everyone

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Message #460 of 811 |

Re: [Stickler Syndrome ] Re: Hello Everyone

im from indiana i dont know of any support groups email me at
valeriemartin5@...

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Sat Oct 28, 2006 6:50 pm

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kate willaims <kate_willaims@...>

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Message #460 of 811 |

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My name is Sarah and my son Ryan has PRS and Stickler. He is now five years old. Ryan has had the mandibular distraction (at 3 weeks old) that brought his...	sarah_maria_43213 sarah_maria_...	Oct 28, 2006 12:08 am
... weeks ... trickiest ... may ... had ... there ... hi sarah, my daughter, now 19 was born with a cleft palate, PRS,and stickler syndrome.My other daughter,...	deb caliroze2002	Oct 28, 2006 4:46 am
Hi Sarah! I to live in Indiana. I sure don't know of any support groups around here. I have 2 daughters with Stickler. I also have it as well. My oldest...	Heather mattnheatherr	Oct 28, 2006 12:21 pm
Thank God I am not the lone one in the state! Right now Ryan's care has been at Riley. While I find a certain measure of relief that they are familiar with...	sarah_maria_43213 sarah_maria_...	Oct 28, 2006 5:11 pm
Hi Debby I am so glad I am not the only one! Is she still having platelet issues? When I saw Ryan begin to bruise it was a very scary thing. We were still so...	sarah_maria_43213 sarah_maria_...	Oct 28, 2006 5:30 pm
im from indiana i dont know of any support groups email me at valeriemartin5@... ... Check out the New Yahoo! Mail - Fire up a more powerful email and...	kate willaims kate_willaims	Oct 28, 2006 6:53 pm
Hi Sarah and Heather, I also have a form of SS. I am 43 and live in the Chicago area. I was diagnosed with it when I was about 29 or 30 as I developed...	MRH3125@... margaritavil...	Oct 29, 2006 3:19 pm

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