Hi Sarah! I to live in Indiana. I sure don't know of any support
groups around here. I have 2 daughters with Stickler. I also have it
as well. My oldest is 12. She is 90% blind in her right eye due to a
retinal detachment. She has had a retinal detachment in both eyes.
She has buckles on them both now. She also had a cleft-palate. She
doesn't have anything else going on with the Sticklers right now. My
second daughter has Pierre-Robin, cleft-palate, also has had retinal
tears, which they have done laser surgery on. She also has osteo-
arthritis. She is 10. If you need to start seeing specialist for
your eyes I love Midwest Eye Institute in Indianapolis. I drive to
Columbus Childrens Hospital for everything else.

Heather