--- In sticklersyndrome@yahoogroups.com, "carole" <sillypilly51@...>
wrote:
>
> Hi I have a 5 month old little boy who has been dignosed with stickler
> syndrome.
> I have been told that it runs in his fathers side of the family but I
> have very little to do with them so I am trying to find ouy more about
> this syndrome from the internet. If antone knows of any good sites
> please e-mail them to me as all the helpI can get would be welcome.
>
> thanks
>

Hi Carole I am Amy, the best thing I would suggest is just use some
good search engines and put Stickler syndrome in and you should have
lots of sites come up. the one I use most here in the UK is
www.stickler.org.uk

This site also has lots of fact sheets you can print out to give to
doctors or teachers when the time comes as I often find I know more
about the condition than most of my doctors and they have found the
sheets most useful.
If you have any mre question feel free to email me to chat.

Amy