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I am a 35 yr old mom of 2 (1 son, who is 4 and a brand new daughter
that is 1 month old).

I was diagnosed with sticklers while pregnant with my daughter. She
was born with sticklers type 3.

she has no vision problems, but does have minor hearing problems,
cleft pallete(soft tissue), recessed jaw. She also has a mic-key
button.


I, myself, only have joint problems and hearing problems in addition
to major dental issues.

I would love to chat with any other moms that have the mic-key button
as I have never dealt with this type of thing before. Are there any
out there that have a feeding tube? I have so many questions, it's
not even funny!

Thank you so much for listening and I am looking forward to chatting
and getting some first hand information.

thank you
jennifer"jenni"

mom to Justin, 4 and Addison, 4 weeks







Tue Sep 12, 2006 5:24 pm

allthingswho...
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Hi, I'm the mom of a 7 year old recently diagnosed with Stickler Syndrome. She was diagnosed at birth with Pierre Robin Sequence and has had a couple of cleft...
sarasmom101596
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Apr 20, 2004
7:41 pm

Where about are you from? One place that i would recommend is Shriners Hospitals and Clinics if you are having any problems with insurance.. They specialize...
Melanie
melaniejbodin
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Apr 22, 2004
4:24 am

Thanks Melanie. We live in K.C. and all her care so far has been at Children's Mercy Hospital. They're a great place to go, but there are so many specialties...
Megan Currie
sarasmom101596
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Apr 23, 2004
7:44 pm

--Hi I feel for you being the Mom of a child with sticklers also.My son has had 5 surgerys since august and has more to go.All of his problems so far are in...
gramafsh
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May 26, 2004
9:43 pm

I am a 35 yr old mom of 2 (1 son, who is 4 and a brand new daughter that is 1 month old). I was diagnosed with sticklers while pregnant with my daughter. She ...
Jennifer
allthingswho...
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Sep 12, 2006
5:30 pm

Hi Jennifer, I have a little girl also with PRS and sticklers, Kait has been tube fed her entire life to date, she is nearly 5 years old. We have probably had...
lisa schroder
schroder_lisa
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Sep 12, 2006
9:09 pm

Hello!!! Our daughter also has a g-tube. She has had one her whole life. She was born with a bi-lat cleft and PRS. She has always had the mic-key button...
Ann-Marie Fosselman
anniefosselman
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Sep 14, 2006
12:07 am
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