Hi,
Can someone please explain further on the joint problems. My husband is having
a difficult time with his back. I take him for an Xray tomorrow. He can crack
every bone. My 2 month old makes noises in his joints also. I dont know if its
just a newborn thing or he is developing the joint problems.

Jacqui

fire_n_ice_1970 <blondie1170@...> wrote:
Hi everyone,
I'm a 35 yr old mum of a 15 yr old with PRS/SS and I also have
PRS/SS. I'm the past 12 mths I've had both hips and both knees
replaced due to osteoarthritis and my son has had a bone graft and
titanium rods put in his back due to kyphosis/scoliosis which was only
diagnosed 2 yrs ago. I have been looking around to talk to other
families going through similar things to me but it seems all the
families on here are from overseas where it seems things are done
differently to us over here(australia).
I was diagnosed as a young child and my son was diagnosed at 3 mths of
age. We both have type 1. We both have problems with our ears, eyes
and joints.










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