Re: [Stickler Syndrome ] Re: Hello, my name is Amy and we have a four month old daughter that
hi amy well i have two boys with this sydrome both who had pierre robin and tube
feeding my older son also had perthes legg disease.. to date at age 10 and 3 the
only remaining visual problems are the perthes the older son has. cleft repair
left the ability for them to eat fine! Thank God... so email me id love to talk.
valeriemartin5@...
---------------------------------
Stay in the know. Pulse on the new Yahoo.com. Check it out.
[Non-text portions of this message have been removed]
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
Offline 
Send Email