Yes, we are going to the conference. We are looking forward to it again. We
attended last year and it was so neat to meet other families with SS. Our 5
year old daughter has SS and it was great for her to meet other children with
similar issues. Hope you can make it!!!!

am

sheapc <no_reply@yahoogroups.com> wrote:
Hi, I have a 14 year old son with SEMD/SS/PRS. Does anyone here have
bad joint contractures and osteoarthritis? Also is anyone going to
the conference in Omaha? Thanks.

Barb






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