Hi, we have Stickler Syndrome (my daughter and I have PRS my son
doesnt) and SED. Put together we have OSMED.

I have issues with osteoarthis in my back, neck and right hip badly.
We have heard that we are at risk for contractures, but have so far
avioded them

feel free to e-mail me at jennaev@...


--- In sticklersyndrome@yahoogroups.com, sheapc <no_reply@...> wrote:
>
> Hi, I have a 14 year old son with SEMD/SS/PRS. Does anyone here
have
> bad joint contractures and osteoarthritis? Also is anyone going
to
> the conference in Omaha? Thanks.
>
> Barb
>