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joint involvement and conference   Message List  
Reply | Forward Message #431 of 811 |
Hi, I have a 14 year old son with SEMD/SS/PRS. Does anyone here have
bad joint contractures and osteoarthritis? Also is anyone going to
the conference in Omaha? Thanks.

Barb
Sat Jun 17, 2006 7:04 pm

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sheapc
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Forward 		Message #431 of 811 |
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Hi, I have a 14 year old son with SEMD/SS/PRS. Does anyone here have bad joint contractures and osteoarthritis? Also is anyone going to the conference in... 		sheapc
Offline 		Jun 17, 2006
7:04 pm

Hi, we have Stickler Syndrome (my daughter and I have PRS my son doesnt) and SED. Put together we have OSMED. I have issues with osteoarthis in my back, neck...
jennaevmooney
Offline Send Email 		Jun 20, 2006
1:23 am

Yes, we are going to the conference. We are looking forward to it again. We attended last year and it was so neat to meet other families with SS. Our 5 year...
Ann-Marie Fosselman
anniefosselman
Offline Send Email 		Jun 20, 2006
10:35 pm
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