There are several forms of albinism. Ouuclar usually affects only
boys.

My daughter has the type where she still has mild colouring (her
eyes are grey, her skin is almost see through its so white but her
hair is light brown.)

What is means for the eyes is that they are missing the layer of
pigment that stops light from going through the iris (coloured part)
and sends it through the pupil. Bryn gets lights through her iris
which leads to lower vision and eye damage.




--- In sticklersyndrome@yahoogroups.com, "Carrie Martin"
<carebare@...> wrote:
>
> hello. my brother had his cleft repaired when he was 2 i believe,
but he is
> now 7 and having to undergo further surgery. just out of
curiosity...did
> they forcast that for your little boy?
>
> my father is completely blind, most the older generation and some
of my
> generation in the family are blind in the left eye.
>
> i am lucky, i only have glaucoma and severe myopia with my eyes.
although i
> do have some retinal thinning, but they are not sure if that is
part of the
> syndrome in my case. i do also have extremely lax joints with
arthritic
> changes..... but like i said, i believe i am lucky.
>
> what is occular albinism exactly?
>
> Good luck to you and your son as well
>
> ~CarrieM~
>
> On 6/9/06, mikeandcasie@... <mikeandcasie@...> wrote:
> >
> > hello. I have a little boy who will be four in august. Last
year he was
> > dx
> > with Occular Albinism. We havent seen our eye spec in a few
months, so I
> > dont
> > know where that will take us. Good luck.
> > ~Casie mom to skyler prs ss trached 9/02, decanned 5/06, former
gtuber,
> > cleft repaired, glaucoma, reflux. Occular albinism.
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>